Gayle....about working out....

[Guest guest]

Gayle,

You almost brought me to tears as I read your email. There were so

many things that you said that made me feel better about today. I have

been going through the same things as your son. Suddenly after a good

run during my childhood and teenage-hood, I crashed during university.

I went through depression and took anti-depressants for a while. I

went through times that I didn't want to do my treatments since I

simply did not care, I was that depressed. School not only got it the

way, it confused me as to what was my priority in life. Only during

the past two years when my standard of living (as you said about your

son) went down a lot, and i was faced head on with what was ahead for

me. It blew me away that I was doing everything right in life (with

school, friends, family, i even volunteered, since I thought if I was a

super good person this disease could not get me) and still CF crushed

me.

Tell your son to consider working out. I went to the gym last night.

I am lucky that I have a brother that does triathlons and knows

cardiovascular fitness better than me, and he went with me. I know

what it feels like to be so sick that the mere thought of working out

seems like absolute craziness. But tell him he has to go. He HAS to.

And if it means walking on the treadmill at a low speed for 30 minutes,

do that. Or walk stairs in the house. I am on IV right now and I feel

like hell. Weak and achy. My skin is all hollow from the Ceftazidime

and Tobi, and I just want to sleep. But I make myself go, put on quite

a show of coughing and wheezing on the treadmill and bike, look like a

total freak with the IV hanging out of my shirt. But you know what it

empowers you to do stuff like that. To show people that you are

fighting for more than a slim figure, which is the analogy for the gym.

But people should be there for their health, and that's why I'm there.

Tell him to do it. And start super slow, and you will be surprised how

his body will react and help him along. And since school might be put

off, and other goals also temporarily, this will give him a goal and a

sense of triumph. Start with little goals and keep going.

May we should set up a support work-out mailing list between me and

your son, and then anyone who wants to join in. This is what I did

last night:

treadmill, 5min warmup (@2.6), 5x (1min@..., 1min@...), 5min warmdown

bike, 5-10 minutes level1, manual

weights - squats - 2 sets of 10

- lunges - 2 sets of 10-20 (depending on how you feel)

- leg press - 2 sets of 20 (light weight)

bike 5-10 minutes level1, manual

Does not seem like a lot, but it totally wore my into the ground. I

went home breathing easy, it felt great after, not so much fun during.

Tell him that he can do it. Even start at home with stairs.....walks

in the park. I believe that he can do it. It's crucial, and I want to

be there with him, even if just on line. I know I'm pushy, but pushy

will get you through the pain.

Let me know what you think.

Oh and about the arthritis, I have Osteoporosis, and brittle bones. i

feel it in my knees in the winter and my fingers. I load up on pain

killers when it keeps me from doing things. But it certainly does not

help anything does it.

My heart is with you guys.

Natalia

[Guest guest]

Natalia,

Can cf cause the Osteoperosis?

Gale

> Gayle,

> You almost brought me to tears as I read your email. There were so

> many things that you said that made me feel better about today. I

have

> been going through the same things as your son. Suddenly after a

good

> run during my childhood and teenage-hood, I crashed during

university.

> I went through depression and took anti-depressants for a while. I

> went through times that I didn't want to do my treatments since I

> simply did not care, I was that depressed. School not only got it

the

> way, it confused me as to what was my priority in life. Only

during

> the past two years when my standard of living (as you said about

your

> son) went down a lot, and i was faced head on with what was ahead

for

> me. It blew me away that I was doing everything right in life

(with

> school, friends, family, i even volunteered, since I thought if I

was a

> super good person this disease could not get me) and still CF

crushed

> me.

>

> Tell your son to consider working out. I went to the gym last

night.

> I am lucky that I have a brother that does triathlons and knows

> cardiovascular fitness better than me, and he went with me. I know

> what it feels like to be so sick that the mere thought of working

out

> seems like absolute craziness. But tell him he has to go. He HAS

to.

> And if it means walking on the treadmill at a low speed for 30

minutes,

> do that. Or walk stairs in the house. I am on IV right now and I

feel

> like hell. Weak and achy. My skin is all hollow from the

Ceftazidime

> and Tobi, and I just want to sleep. But I make myself go, put on

quite

> a show of coughing and wheezing on the treadmill and bike, look

like a

> total freak with the IV hanging out of my shirt. But you know what

it

> empowers you to do stuff like that. To show people that you are

> fighting for more than a slim figure, which is the analogy for the

gym.

> But people should be there for their health, and that's why I'm

there.

> Tell him to do it. And start super slow, and you will be surprised

how

> his body will react and help him along. And since school might be

put

> off, and other goals also temporarily, this will give him a goal

and a

> sense of triumph. Start with little goals and keep going.

> May we should set up a support work-out mailing list between me and

> your son, and then anyone who wants to join in. This is what I did

> last night:

>

> treadmill, 5min warmup (@2.6), 5x (1min@3..., 1min@2...), 5min

warmdown

> bike, 5-10 minutes level1, manual

>

> weights - squats - 2 sets of 10

> - lunges - 2 sets of 10-20 (depending on how you feel)

> - leg press - 2 sets of 20 (light weight)

>

> bike 5-10 minutes level1, manual

>

> Does not seem like a lot, but it totally wore my into the ground.

I

> went home breathing easy, it felt great after, not so much fun

during.

> Tell him that he can do it. Even start at home with

stairs.....walks

> in the park. I believe that he can do it. It's crucial, and I

want to

> be there with him, even if just on line. I know I'm pushy, but

pushy

> will get you through the pain.

>

> Let me know what you think.

> Oh and about the arthritis, I have Osteoporosis, and brittle

bones. i

> feel it in my knees in the winter and my fingers. I load up on

pain

> killers when it keeps me from doing things. But it certainly does

not

> help anything does it.

> My heart is with you guys.

>

> Natalia