Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Dear List, I periodically repost this email. HTH,Mimi HELPFUL TIPS FOR SCD SCD protocol ---------------------------------------------------------------------- Please avoid peanut butter,many SCD adults report problems with peanut butter. You may add it when digestive problems have resolved but watch carefully that there are no changes after adding this food. Peanuts affect the thyroid. PEANUT BUTTER SEEMS TO BE ONE OF THE MAJOR REASON FOR FAILURE WITH SCD. Many children cannot digest nuts during the early phase of the diet,some children may never tolerate them. If you did not do the intro diet then you may consider removing nuts for a while and observe if there are improvements. Carefully watch for any reactions when nuts are consumed again. Do not over consume the nuts. Supplements: I once counseled the mother of a child who had the most horrible GI symptoms. After the mother removed a supplement,the child's problem was resolved. You might need to remove all supplements and reintroduce them one at a time. Many children cannot tolerate any supplements in a capsule. You may need to open the capsule for them. Some pills are a medical necessity,please use good judgement and a compound pharmacy to make them SCD legal if they contain illegal fillers. Avocados and olives are great foods for kids. Look for olives that contain no additives in the health food store. Enzymes: While enzymes are not part of the original SCD protocol,some parents feel that " SCD plus enzymes " is a great combination. However,there are some children who cannot tolerate enzymes. You are the expert on your child; there is no substitute for careful observation. Yogurt brings fantastic results. Do not miss it's magic. Yes,most kids with autism can tolerate it after a length of time on the diet. Start out with 1/8 of a teaspoon and increase gradually. If you see any die off reaction that you do not want,decrease the amount of yogurt. For some children,the die off reaction might be a runny nose,irritability,worsening of digestive issues.... Avoid the difficult to digest foods. Cashews,dried fruit,whole nuts,beans,lentils and peanut butter are advanced foods and should only be tried several months after GI healing has taken place. Some folks report problems with carrots. Young carrots that are well cooked might be less problematic. Please start out with the intro diet and gradually introduce new foods and watch carefully for any reactions. Many parents skip the intro diet and jump right in and get wonderful results. If you are one of these parents please consider restarting the diet;you will get even better results! I understand that many parents cannot restart the diet because they are overwhelmed by all the other therapies,but please remember that the real SCD will improve the results from the other therapies. If you did not follow this introduction to SCD,then you are not doing the real SCD. The real SCD means that your child is only eating foods that he can tolerate,if he cannot tolerate a certain SCD legal food then he will not get the full benefit of SCD. If you are a new parent and the intro diet seems to be daunting,should you go back to GFCF? No, many parents report getting great results with just eliminating starches,sugar and the most advanced SCD foods. Try using SCD foods that are not too advanced but remember that you might not be getting the full advantage of SCD. However,your child will learn to like veggies and other nutritious foods and you might have an easier time,restarting SCD in a few months. Chelation is not part of the classical SCD protocol but we welcome parents who are doing chelation. Parents who do chelation must do SCD because many forms of chelation are extremely hard on the GI system. Please be aware that the damage to the stomach from chelation may sometimes prevent gut healing. If you do not see progress with SCD,then please take a chelation break and discontinue chelation for several months. Many parents report that they get better results with chelation after doing SCD. Some parents report that they get better results with SCD without DMSA. Watch out for infractions. Make the avoidance of infractions the goal of your life. You have to remember that autism/GI damage is a major condition. If your child had a major illness then you would agree to put your child in a hospital for an extended stay. There is no excuse if the doctors promise a great improvement. If you have a child who fights SCD,then confine him to activities where he will be safe from toxic foods. Please avoid ready made foods even if their ingredient list appears to be SCD compliant. Hidden additives,especially sugar,are very common in the food industry,even with organic foods. If you did not do the intro diet and want to report a non positive outcome with SCD on other list serves,then please explain to other parents that you did not do the intro diet and that there is a possibility that your child's progress was stalled by a food that your child cannot tolerate or digest well. This also applies to any other deviation from the protocol mentioned on this post. Parents who do not follow our protocol are also not eligible to compare SCD to other new diets. Here is our list protocol from a long time ago: http://health.groups.yahoo.com/group/pecanbread/message/35899 This was written by Elaine and Mimi. 1)Eat only food that is allowed on the diet,only using food that the child can tolerate and digest. Some of these permitted foods should be introduced carefully to determine if, at the beginning, the child can tolerate the food and in what amount. 2)Use probiotics and/or yogurt.Goat yogurt is the official yogurt of this list. 3)Vitamins from Freeda as written in BTVC or from another SCD legal brand. A vitamin without added fillers such as cornstarch, glucose, fructose, sucrose, sorbitol, etc. Cellulose, although added cellulose is not a good idea, is permitted. Vitamin producers need some kind of filler and cellulose is the least objectionable. Optional 4)Enzymes if you do not good results with the above protocol 5)B12 shots(but highly recommended) A few extra points from Sheila. 6. Those who do the intro diet even for a day or two seem to get better long term results. 7. A food journal is very helpful to determine if there are any reactions to new foods, supplements etc 8. Slowly add new foods. This is difficult to do but really makes a difference in the long run. 9. When posting to the list, it is really helpful if people remember to say what they have, how long on the diet, and if appropriate what supplements they are giving their kids. 10. That people use the other resources available to them. Such as www.breakingtheviciouscycle.info and www.scdrecipe.com These are two fantastic sites filled with tons of information. The recipe site is so very inspiring of all the great things that can eventually be done with this diet. And as always in any discrepancies between recipes and the book. BTVC gets the final word. Sheila ****************************************************** Mimi's addition: If doing the intro diet is too hard for your child,just start the diet.You can always go back to the intro diet later. My addition was approved by Elaine. Elaine approved this protocol YOGURT PROTOCOL The following protocol is for a child who has been dairy free prior to SCD or for a typical child with extreme milk sensitivity and GI problems. THIS IS IMPORTANT Step1 Try dairy free SCD for at least several weeks prior to the introduction of the yogurt,this gives the gut a chance to heal Another reason to wait is that we have had several ASD kids who get a bad initial reaction to SCD( even on the dairy free version of SCD). So it is wise to wait for a few weeks before introducing goat dairy products.In doing so you can decide if the bad initial reaction is due to a yeast die off caused by the elimination of malabsorped carbs or a reaction to dairy products. Step2 After you get good results with SCD and you do not have any more yeast die-off you may start to try the goat yogurt. That goat yogurt must be made with the right GOAT yogurt starter. Goat yogurt or sheep yogurt are recommended for children who were dairy free before starting SCD. For these children we endorse goat/SCD as the official diet of this list. Some ASD children are able to tolerate cow yogurt.If you do try cow yogurt, introduce it very slowly.If you do try cow yogurt and you get bad results it is not our responsibility.If you post about bad results with cow yogurt,please make it clear that you were using cow yogurt and that it is not the official diet of this list. It is critically important to follow this protocol. This gives you the best chance for success with your child \ Once yogurt is tolerated,give 1-3 cups a day. [Nut flours are not required on this diet.If you cannot tolerate almond flour use another nut flour.] Quote Link to comment Share on other sites More sharing options...
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