Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Hi Debbie, Just saying hello and welcome to the board. I'm sure you will find great support and help here. I don't know about CF and how it might affect the CP. I have hereditary pancreatitis and am near enough end-stage although not yet diabetic. The symptoms you describe are common with CP. The enzymes, taken in sufficiently high doses, should help with the bloating, gas etc. I have found a significnt improvement myself since being prescribed enzymes, in my case Creon. However, you need to check carefully with your docs about enzyme doses as you also have CF. Heidi mentioned the caffeine. Personally, I hadn't seen before that it can exacerbate the CP sysmptoms but I might try decaf now! It is advisable to eat low fat meals and not too much at a time. High fat and high protein seem to be the most troublesome. Beware though! Some days a particular food may be fine and other days it could spark off a reaction. I have often heard Heidi advise keeping a journal of activities, foods and reactions. I think it's a very good idea as it could enable you to see patterns where and if they exist. The other side of the treatment plan is to have appropriate pain relief. I'm sure you've discussed all this with your docs. I do hope you begin to see an improvement soon and I wish you luck with your treatment. I know how it feels just after diagnosis...pretty devastating. However, I think if you take positive steps to take some control over the symptoms, you can be hopeful of being able to manage the condition better and coming to terms with it rather more. With very good wishes, Fliss (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Debbie, I had a similar surgery a couple of years ago. I had my expander put in, if I recall correctly, about 3 weeks before surgery. It made several letters in the alphabet difficult to say, such as B and D and E, but otherwise wasn't too terrible. My surgery went very well and I was back to work in less than a week. Had the surgery on Friday, I think and did half days the following Thursday and Friday. Gosh, it seems like forever ago and my memory is all filled up with my recent surgery issues ... but I think that's about right. Turning the expander sucks. It's awkward and painful ... but not horrible. At least it wasnt' for me. It helps to have someone with you the first few times. Best of luck as you move forward! Carol > > > Hi All! > > > > > > I'm having upper jaw (palatal expansion) surgery on July 14th > and > > > really feel like I have a lot to learn when perusing all of the > > > questions and answers from you guys and gals! I have received > > > limited info. from my Orthodontist (probably due to me not > knowing > > > what questions to ask), and my pre-op appt. with the surgeon is > > only > > > 2 days before the surgery... > > > > > > O.K. - here goes...The Orthodontist installed a Maxillary > Expansion > > > Device two weeks ago (won't be activated until surgery) and I > asked > > > why it couldn't wait until closer to the surgery - as it isn't > > > helping with anything now (and of course, contributes to me > > sounding > > > stupid). The answer I got was that the surgeon wanted it in > place & > > > that it would give me time to get used to it ( 1 1/2 months!?). > > Does > > > that sound right to you? Although I don't want to undermine the > > > O.D. - it seems to me the same thing as putting a splint on a > > broken > > > leg before the leg is broken to see how you'll get used to the > > > splint??? > > > > > > If any of you has any advice on questions I should ask, and any > > > input you can give me (I am a 46 yr. old professional woman, > > married > > > w/ twin 8 year olds)I would really appreciate it. I feel like I > > > should know much more at this point (pre-surgery) than I do. > > > > > > Thank you! > > > > > > Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Thanks Mara ;-). I'm currently taking 4 premarin per day and the bleeding has stopped. The tests didn't really tell anything new. I have small fibroids, line is normal. After heavy b from march 11-may 25, I'm just glad it stopped. I take this five weeks and not sure after that because I don't want to take the provera again. It really seems to make it worse. I will try the CLO but drinking it is going to be a problem. I have regular CLO supplements. I'll save the Vitex for last because supplements seem to mess me up worse sometimes but there were definitely some ideas to check out in the comments also. I don't like taking the premarin but right now, I just need to get my iron/ferritin up. Anyway, thanks for thinking of me! Debbie 41 cd Debbie, thought this article might have some info you could use:http://www.westonaprice.org/womens-health/637-treating-heavy-bleeding-and-fibroids.html Mara Quote Link to comment Share on other sites More sharing options...
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