Re: / bacteria

[Guest guest]

Diane, Do you take methotrexate or anything else with

your biaxin?

--- Diane Arthur wrote:

> , I don't know much about this, so I'm putting

> myself out on a limb.

> LOL Connie H, help!!!!

> Since I have started on Biaxin, I have been fairly

> flare free. Connie if

> you could explain this for us I won't be saying the

> wrong thing. LOL I know

> that RP is an autoimmune disease, but I know that

> the biaxin has helped me

> greatly and think it has to do with the mycoplasma

> bacteria. I can feel

> myself detoxing while on it. This is the first time

> I have been able to

> lower my pred. I'm not sending out false hope to

> you all. I just know it

> has worked for me.

>

>

> s

>

>

> > You wrote " " " I think that the aches are caused by

> a bacteria;

> > present with RPer's " " " " Please do me a favor and

> fully explaine

> > what you are saying ! Are you saying RP is a

> bacteria? if so you are

> > very wrong and this is very upsetting to me as it

> could be to others.

> > Please talk to your DR about this, RP os a

> Autoimmune disorder and

> > there is NO data linking " RP " to any bacteria of

> any kind, maybe

> > others but not RP. I feel you should do some more

> reserch on the

> > subject at hand so we do not confuse people.

> >

> > I look forward to a reply from you soon.

> >

> > Love,

> > P.

> > Phlebotomist, MLT and ASCP certified

> > Golden Colorado

> > ----------------

> >

> > >

> > > ,

> > >

> > >

> > >

> > > I am interested in the pressure you describe. I

> also get what I

> > would

> > > loosely call headaches, really just incredible

> pressure inside my

> > head. I

> > > feels awful! Could you describe what you

> experience? I have had

> > an MRI

> > > that was normal. My blood pressure is also low.

> I don't know what

> > to make

> > > of the sensation, except that it feels like

> extreme pressure

> > building up in

> > > my head. I have wondered if this could possibly

> be vasculitis. Any

> > > thoughts?

> > >

> > >

> > >

> > > Kathleen (Tx)

> > >

> > >

> > > DISCLAIMER!!

> > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS

> > RECEIVED

> > > HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT

> WITH YOUR DOCTOR

> > BEFORE TRYING

> > > ANYTHING THAT IS SUGGESTED. WE ARE NOT A

> SUBSTITUTE FOR YOUR

> > PHYSICIAN AND

> > > ARE NOT TRYING TO BE. REMEMBER EVERYONE IS

> DIFFERENT AND TREATMENT

> > MAYBE

> > > DIFFERENT FOR MANY OF US. THANK YOU

> > >

> > >

[Guest guest]

In a message dated 5/17/02 1:09:12 PM Pacific Daylight Time,

dixie2130040@... writes:

<<

Diane, Do you take methotrexate or anything else with

your biaxin?

- >>

Sorry, this is , I was at my sister's (Diane). Yes, I take pred 10mg

(down from 80mg) and plaquinel. Also a bunch of other meds for my heart. I

have been on metho and Imuran and sorry to say wasn't able to take the Imuran

and not able to decrease my pred on metho. When I started on the Biaxin, I

was able to slowly decrease my pred. I did get down to 6mg but had a mix up

with the pharmacy and they messed up the pred so I'm back on 10 for the

moment. I was lowering my pred before I started on the Plaquenil. My rheumy

prescribed 400mg of Plaquenil, but I am only on 200mg now. In my honest

opinion, I think I could do without it, buy my rheumy wants me on it to be

safe. LOL

Hope this helps.

hugs