Re: what is happening in Aust?

[Guest guest]

Hi Fiona,

I am an Aussie too, I am a member of CF Queensland and other than the events

they hold I dont think there is much else on. There was the national CF

conference held in Brisbane last year that we were all invited to attend...mind

you at a cost of $100 a day for 3 days!!! Sometimes the hospitals host morning

teas and things but other than that I dont think there is anything else. I live

in Brisbane so if you are from around here let me know and maybe we can catch up

sometime....after all this Christmas madness!!

- mum to , 2 1/2 with CF

email - stephandjack@...

Fiona Eaton wrote:

This is a post for Australian families. I am still pretty new to the CF

thing and these guys seem to be so proactive and this list gives them the

chance to do and share so much information. Does anyone know what is

happening here in Australia? We are a member of the Cf Assoc. QLD and we

have been given some information and the magazine but maybe there is a whole

lot of things we are missing out on. Is there an Australian list? What sort

of things is everyone involved in?

Fiona mo Jack 11mths w/cf and one on the way.

_________________________________________________________________

E-mail just got a whole lot better. New ninemsn Premium. Click here

http://ninemsn.com.au/premium/landing.asp

[Guest guest]

Fiona,

Hi this is Terri from Hobart. My daughter Ainslie is now 11, she was

diagnosed in Sydney via the guthries test. She is quite a well child

only being hospitalised for sinuses, although she is on quite a

regime of antibiotics + other meds. I also have her on

vitamin/mineral supplements along with flaxseed oil and accupuncture.

From what I have experienced -between Hobart and Sydney - and heard

from others on this list and friends form Hobart who regularly go to

Melbourne - every CF centre acts differently.

I have come to the conclusion that as a parent of a child with cf or

any other medical complaint the parent has to be proactive for their

child. Many cf centres wait till the child gets very unwell before

treating the causes. I am not that patient a person I do not like to

see my child in pain or in trouble with their health so I joined this

list and have learnt a wealth of information and try to put some of

it into practise.

The best advice I can give you is find yourself a good GP or Cf

centre that you feel LISTENS TO YOU and you suspicions about your

childs health. You are the BEST judge of your childs health. It is

amazing how quickly you learn what type of cough your child has.

I hope I have not depressed you. I am sure your little one is

beautiful and is the light of your life. Congradulations on your

pregnancy.

Terri

from Hobart mum to Ainslie 11 wcf and Connor 7 nocf