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Re: FRANK----------------

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I am sorry......I guess your first email about organizing it because there

was to much bantering and not enough medical information was way overblown.

The gist of what you want to do is organize the old e-mails - the medical

ones - so that other new member can go there to procure the information without

re-asking the same questions - am I right?

Your idea is great and time consuming. When my kids were first diagnosed I

received this wonderful, informative binder which had all the information you

are talking about bound. Boomer' s organization printed it out. A friend

forwarded it to me. Its so information - as good as Orenstein's book.

Its

excerpts of information from parents/people w/ CF.

Hey..we should all publish a manual - book...with 's organizational

skills and us we could do it LOL...........

, How is your son and what hospital?

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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