Heidi's part four question

[Guest guest]

Hello Heidi,

My partner, Jeaneen, answered the question to our loved ones. Here

are her answers:

What is the hardest part in dealing with our loved one's RP??

· The unknowns. The small day to day unknowns and knowing what will

happen in the future.

· Seeing her in pain and not being able fix it.

· Not knowing when it is ok to count on her to carry more of the day

to day responsibilities of living, or when she will be hit with a

flare and will not be able to participate as much.

· Missing her energy and sense of humor.

· Not being able to be dependent on her at times.

· Seeing her struggle with body issues.

What could the group do to help me to help our loved one??

· You are doing it. It is a huge relief to know that she has the

group to go to for information and support. I am very glad that the

group is able to be there in ways that I can not. Thank you very

much, all of you.