$$$ Funding for SCD diet

[Guest guest]

Hello everyone

I need your brain juice and input

We can bring about this unprecedented

social mentality change

that will benefit autism

hopefully it will remind folks that autism has a huge

gastrointestinal

component that is TREATABLE with diets and etc

SCD diet is the No.1 intervention for my 3 children

but it is very expensive

recently, I tried to apply for funding for specialized diets.

you see, if your child has phenylketonuria/PKU or other chronic

medical conditions having the need for " medically necessary

specialized diets "

the state will fund for specialized diets for that child

in my state of California

(I believe every state has a similar one)…

the California Childrens Services will provide assistance for

children who have the following medical conditions..

http://www.dhs.ca.gov/pcfh/cms/ccs/

long list of medical conditions, including:

Endocrine, nutritional, and metabolic diseases (thyroid problems,

PKU, diabetes) Disorders of the gastrointestinal system (chronic

inflammatory disease, diseases of the liver)

Disorders of the nervous system (cerebral palsy, uncontrolled

seizures)

Disorders of the musculoskeletal system and connective tissues

(rheumatoid arthritis, muscular dystrophy)

(the list goes on, but you can see, autism symptoms fall in a few of

the listed medical conditions)

But the intake nurse said, " we of course do not cover anything for

autism, because we all know there is no cure for autism "

I did not bite off her head but simply replied

" I have enclosed endoscopy/colonoscopy/biopsy results for my 2 boys

showing

They have ileitis, colitis, esophagistis, etc etc, in general,

diffused enterocolitis "

The nurse patiently replied " yes, but we do not know what

enterocolitis means

We need a CCS approved doctor in California to read the reports to

us " (our pediatric gastroenterologist Dr.Krigsman is located in New

York)

As if Dr.Krigsman wrote his report in Martian language!

So now, I am going out to hunt for a local mainstream GI doctor who

would

Support of CCS application

(if you know of a Californian pediatric

gastroenterologist enlightened about dietary interventions,

please e-mail me ASAP)

A few days ago, I got letters of approval that my 2 (ASD) sons

Have conditions (based on their endoscopy results " Chronic

gastrointestinal inflammation " , I think) that meet

The criteria for CCS services (Chronic diahrea, constipation,

abdominal pain, abdominal distention, failure to gain weigh,

immunodeficiency, etc)

However, I believe the services has to be rendered by CCS approved

doctors

In CCS facilities.

This is not what I wanted. I do not want more DRUGS for my kids

I wanted them to understand that my kids need funding for

specialized diets.

Currently CCS nurse says she will authorize any local pediatric

gastroenterologist's appointments/treatments, I just need to supply

her with a name.

Since we are in autism dark ages, the only few GI docs I know of who

are

Autism savvy are

Dr.Krigsman, Dr.Buie, some Italian GI guy, Dr.Wakefield. Period.

The other GI guys will say " take acid reflux meds and pain meds and

let him

Eat ice-cream, he has all his life to suffer anyway " or that the

constant

Crying is due to his brain/autism problem, not GI

So now, if only I can get a local mainstream GI doc to connect with

The very busy Dr.Krigsman

And if Dr.Krigsman can enlighten this local CCS approved doctor,

Then, I can have this local CCS approved Doctor suggest to CCS that

I need funding for specialized diets!

And with the support of my local CCS paneled GI doc

Then, my application will have a chance

But now I am stuck, having to pick from a list of GI docs who are

Not interested in diets as a treatment

Any ideas how to convince them??

We all know that Doctors these days do not have time to talk

Only have time to prescribe drugs and whiz out to see the next

patient

I will supply them with scientific reference list

(Gottschall, Wakefield, Krigsman, ANDI's list of gastrointestinal

problems/autism)

I am so close yet so far

If you have any ideas

e-mail me please

if this works, so many families could be helped!

As of now, I imagine, SCD diet folks in New York (Krigsman),

Massachussettes (Sid Baker, Tim Buie) can start their applications

For funding in their own states

This must be done very specifically, scientifically and carefully

With supportive paperwork (eg endoscopy results supporting

application)

To support their applications

Coz we know, mainstream " treatments " for these kind of things in our

current

Dark ages are surgery, pain meds, and more meds " instead of dietary

changes

any ideas, please e-mail me privately

Jzin