Re: Oklahoma City Children's Hospital

[Guest guest]

We live in the Tulsa area. E- mail me and I'll get you some info about who

may know. She is not on this list.

Take Care-

Mom to 2 w/o CF and Savannah w/ CF

[Guest guest]

Hi Jacki,

Does your 18-yr. old currently attend Children's, or are you thinking

of going there?

My son went to Children's in OKC from diagnosis (1983) to 1992.

Debbie Berry, the CF nurse at Children's is the most wonderful,

compassionate, knowledgeable person, and has never been afraid to

keep an open mind.

We left Children's in '92-'93 to follow his CF doctor when he left to

start his own practice. Children's brought in Dr. Royall to replace

the other doctor, and I've heard good things about him. I think

Children's has since added another CF doctor in addition to Royall.

My son hasn't seen his OKC CF doctor since last December (he moved to

Chicago in 1999 when he transferred universities), and I doubt he'll

see him again now that he's graduated college and has his own health

insurance plan. I guess he'll cross that " Who's my doctor? " bridge

whenever he next needs a doctor, and he'll end up choosing a doctor

here in Chicago.

Kim

Mom to (24 with cf) and (almost 20 1/2 without)

--- Jacki T <medneck@y...> wrote:

Would love to hear from anyone that is being treated (for CF) at the

Oklahoma City Children's hospital....thanks......

Jacki (Mom to 18yr oldw/cf