Re: Post about Inhae-Moonsung

[Guest guest]

Moonsung,

So sorry to hear that Inhae is still flaring. Sometimes this darn RP can be so rough on us. I know it must be difficult for you as a parent to watch a child suffer with anything and especially RP.

From what I read in your post you think it is her diet that could possibly be setting off the flares. That is an interesting concept. Please keep us posted on what you find out. We all want to find what might be causing RP.

I am sending good thoughts and prayers Inhae's way. She has got to get better! Enough flaring! Tell her we think of her and your family here and please keep us posted on how she is doing. WE CARE! Give her a hug from Eyeore! )

Lots of love

Glenda

Dear , Glenda and All membersHi, This is Moonsung. Heartful thanks for your thought on my daughter. Inhaeis not so well with her screlitis and costochondritis.Her flaring is not going under control since Aprillast year. My family have come to Korea this week andwill stay here for several months until she get in herremission. She will be taking some aggressive medicalcare, new drug or/and alternative medication, ifneeded. She is on PD 20mg, Azathioprine 100mg and Cyclosporin200mg. And 2~4 pills of Panadein (painkiller).Auto(endo)toxification through intestinals issuspected to increase her symptoms. I want to consultthis issue with colon specialist in near future.I hope there is a way or test to identify theautotoxification.Any members who have experience or study about theendotoxification, especially by food, and the requiredtreatment, kindly advise me on them, please.Best regards Moonsung Jun