need to vent

[Guest guest]

Hi, I'm sorry but I need to vent alittle. I hope someone out there

is listening and I'm sure many of you can relate to my post. I just

got off the phone with my GI doc. I was to call him 3 months from

my last ERCP. Well it has only been 2 1/2 months but I have been

suffering with pain more often than not and my husband has been

bugging me to call the doc and give him my update. The doctor told

me that I am to start taking Creon 10 enzymes and was surprised that

I haven't already been given them from my PC doc. He also told me to

continue to take pain meds as necessary. I am to call him in

another 3 months and give another update. He said if I am still

having pain then I can stop the enzymes (because they aren't

working), and have another ERCP done to check on the ducts to see if

I need more stenting done. Then he said if I loose another 10

pounds that I would have to have a feeding tube (major freak

out!!). He also told me that I could then try sandostatin hormone

shots, to help the intestine digest food. He then warned me about

the price for these shots and that most insurance companies don't

cover the cost. I do have pretty good insurance from my husband. I

guess my question would be, Has anyone tried these shots and do they

work?? Do you take these shots with pain meds too?? He also

mentioned having an EUS with nerve block. My mind is just spining

from all the information that he gave me that I became overwhelmed

with emotion. Which explains the reason I've been in tears . The

doctor told me that he is treating me for chronic pancreatitis even

though nothing shows up on the cat scans yet. He said that in time

something probably will and I would be treated with the same options

and pain meds that I am taking now. Does anyone out there get lots

of relief from pancreatic enzymes alone?? or with pain meds???

Sorry if I don't make much sense right now. I guess I have been

unofficially given a diagnoses of CP. I don't know whether to be

releived or terrifed. Really I am feeling both right now!!! Thank

you all for listening. I feel like I'm falling apart right now.

Kris in TN