Re: HELP ME PLEASE I have Chronic Pancreatitis and no one will...

[Guest guest]

Giovanni,

I know what your going through. It is amazing that many ER docs don't

know that with CP your enzyme levels can be normal. Your not alone in this a

lot of people on this board have had the same experience. I don't understand

why your doctor told you surgery won't help, I've never heard that before. I

had a whipple just over two years ago and have not had a single episode since. I

do have to take the enzymes everytime I eat and the do have some difficulty

with digesting fats but these are very manageable. They were able to leave part

of my pancreas so I'm not a diabetic. Have you had a mrcp (an MRI of the

pancreas). I would recommend seeing a surgeon who is an expert in pancreatic

surgery.

It can help I went back to work 9 months after my surgery and have missed

only one day of work to illness since (the flu). If you have any questions I'd

be

glad to talk to you. I don't always check the posts so you can e-mail me

directly at muspub751@.... I'm sure you're get lots of other good advice,

there are many knowledgeable compassionate people here.

Good luck,

Rob

[Guest guest]

Hello Rob

Its glad to hear from you thankyou for responding to my message. What

i meant about the surgery is the doc who did the test said that it is really

to late and I am very worried about a Transplant that is what I do for a

living so iknow all about it. Its not that easy and most the Doctors still dont

belive me because im so young and it started when i was only 21 and that is very

rare. The MD's say that it usually happends in the 40s and later and im

trying to tell them well I have it and the specialist have done and checked and

found out that I do have it and i have had it for a very long time and now it is

late in the game. I went to my pain doctor on tuesday and I told him that im

not comfortable and that i need to be honest with him i mean i wasnt before

because i thought he didnt want to hear it but i was and he was very helpful he

upped the patch to 100mcg and Dilaudid to 8mg every 4 hrs or for Break through

meds. and i was supposed to see a New special GI doctor today but he had an

emergency and couldnt see me now i have to wait until june 3rd.. so tell me

about you and what stage you in and what you take and things.. I should tell you

when this started I was in the hopital like 6 months out of year and I get

admitted to the Hospital at least 3 times a year and that is not alot.. well get

back with me and we can talk .. thanks again for getting back with me.. ok

Giovanni