Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 I'm not sure if I have said this before, but this idea was given to me by a friend in CA. who is a nurse. She has a son that is quite healthy now, but began to have heart issues at the age of one year. He is now six years old, and doing pretty well. Anyway, she sugggested that I purchase a large three ring binder and dividers. Of course, one section would be a food log. Other sections would include a behavior log(hers was daily at first, but eventually has progressed to every so often and especially if something peculiar happens), a section with copies of all lab reports, MRIs, or any other test type results, a section with progress notes from any therapists, and any other sections that you think might be helpful. Also, she kept hospitalization records with discharge info, copies of his charts from hospital stays, ect. She recommended it because she said it is incredibly helpful for any health care practicianer that you see for any reason. They always want to know everything, and sometimes you just leave something out accidentally. Anyway, I hope this helps you and anyone else who is starting scd. Meleah Re: DAN! nutritionist & supps >>Date: Tue, 12 Sep 2006 19:32:44 -0000 >> >>Actually, no, I have not spoken to her about SCD at all - yet. I had >>tried it half heartedly a few years ago but of course that didn't >>work out well & I had no support at the time. My son has been GFCF >>for almost 5yrs & me & baby for several months. My holistic >>practitioner regards SCD highly & has seen many of her autistic >>patients benefit from it so she recommended it really for me, but >>knowing I have an ASD son so I could do it for everyone. I only >>called the DAN! nutritionist because I wanted to exchange the >>Brainchild & explained why to her office worker, who called her, & >>then called me back to relay that information & to say she wanted to >>speak with me first. He did also say they have other kids on SCD in >>her practice but since I've never spoken to her about it personally >>I don't know what her attitude is or what she'll recommend, except >>that she said to " ignore all that " on the supps. >> >>She's been somewhat helpful but not to the degree that I'm not >>questioning of her; I question what she's saying greatly & am >>wondering if I even want to pay for the consult (not free!). It >>could be helpful, or not. >> >>Thanks, Michele >> >> > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Michele, One thing we SCDers see over and over again is people who say things like, " Oh, specific carbohydrate diet... that's like Atkins, isn't it? " and we get to explain that no, SCD is not about low carbs, it's about specific carbs. Or they say, " Oh, it's just another form of GFCF... " and we get to explain that yes, SCD, because it eliminates all grains is, indeed gluten free, and yes, SCD can be done casein free, no, it is not just another form of GFCF. While some DAN doctors have made the effort to learn more about SCD, others have not, and the wise SCDer carefully compares all advice given against what's in *Breaking the Vicious Cycle* and on the BTVC and Pecan Bread websites. SCD requires fanatical adherence. So a practitioner who tells you to ignore SCD protocols isn't doing you any favors. However, in fairness to the practitioner, since the information you had was relayed through an office worker, things might have gotten garbled. Two years ago, I had a blood test because I am plus-size and my grandmother was a Type 2 diabetic. The office worker called me and informed me that I had to come in for an appointment at once because I was severely diabetic. In point of fact, no, I wasn't. My blood glucose was slightly high, in the range that they call " pre-diabetic, " and as it turned out, I was able to handle it by diet alone. Yet the office worker translated my doctor's comment that my BG was alightly high to mean " diabetic " when that wasn't what he'd said at all. So, something similar could be happening with your practioner. Whenever possible, you want to use SCD-legal supplements. Be aware that many practitioners simply do not comprehend that the objective of SCD is to starve out the bad bacteria and that allowing " a little of this " and " a little of that " completely undermines the premise of SCD. They don't understand, for instance, that bifidus, while occuring in a normal gut, can be an opportunistic monster in a non-normal gut. It is not a team player. While we would never, ever, counsel someone to avoid medical assistance when necessary, it has been my experience that even doctors who ought to know something about diet and nutrition often don't know as much about SCD as dedicated SCDers. -- Marilyn (New Orleans, Louisiana, USA) Undiagnosed IBS 25 Years, SCD Five Years Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Let's also keep in mind that most physicians...and most health care professionals in general, for that matter...admittedly have about two hours of training in diet/nutrition...unless, of course, they are a dietician or nutritionist. Even for those, most of them have been educated on various diet adaptations for those with special issues. Meleah DAN! nutritionist & supps > > Michele, > > One thing we SCDers see over and over again is people who say things like, > " Oh, specific carbohydrate diet... that's like Atkins, isn't it? " and we > get to explain that no, SCD is not about low carbs, it's about specific > carbs. Or they say, " Oh, it's just another form of GFCF... " and we get to > explain that yes, SCD, because it eliminates all grains is, indeed gluten > free, and yes, SCD can be done casein free, no, it is not just another > form > of GFCF. > > While some DAN doctors have made the effort to learn more about SCD, > others > have not, and the wise SCDer carefully compares all advice given against > what's in *Breaking the Vicious Cycle* and on the BTVC and Pecan Bread > websites. > > SCD requires fanatical adherence. So a practitioner who tells you to > ignore > SCD protocols isn't doing you any favors. > > However, in fairness to the practitioner, since the information you had > was > relayed through an office worker, things might have gotten garbled. > > Two years ago, I had a blood test because I am plus-size and my > grandmother > was a Type 2 diabetic. The office worker called me and informed me that I > had to come in for an appointment at once because I was severely diabetic. > In point of fact, no, I wasn't. My blood glucose was slightly high, in the > range that they call " pre-diabetic, " and as it turned out, I was able to > handle it by diet alone. Yet the office worker translated my doctor's > comment that my BG was alightly high to mean " diabetic " when that wasn't > what he'd said at all. > > So, something similar could be happening with your practioner. > > Whenever possible, you want to use SCD-legal supplements. > > Be aware that many practitioners simply do not comprehend that the > objective of SCD is to starve out the bad bacteria and that allowing " a > little of this " and " a little of that " completely undermines the premise > of > SCD. They don't understand, for instance, that bifidus, while occuring in > a > normal gut, can be an opportunistic monster in a non-normal gut. It is not > a team player. > > While we would never, ever, counsel someone to avoid medical assistance > when necessary, it has been my experience that even doctors who ought to > know something about diet and nutrition often don't know as much about SCD > as dedicated SCDers. > > > -- Marilyn (New Orleans, Louisiana, USA) > Undiagnosed IBS 25 Years, SCD Five Years > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
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