OK, GUYS PLEASE HELP!!

[Guest guest]

Just to be brief...I jut now returned home from my EUS at the Lahey

Clinic. After the procedure, I had written notes from the doctor

(That I THOUGHT was so wonderful!!).....he said in the notes " I see

minimal changes of chronic pancreatitis. I am not sure that I can

attribute your pain to these changes. " HUH?????? This is the same

doc that was talking about damage occurring on

a " microscopic/cellular level " when I first went to the initial

consult with him. I demanded that he speak to me right then and

there (after the proceduree) because the notes he left had me

wondering and then after talking to him literally in tears. He said

I cannot diagnose CP because I need to see 7 signs and you only have

2 of the seven and these can be attributed to anyone's pancreas in

someone your age. " I'm 46....so he now is saying that he won't give

me a definitive dx of cp!! When asked about the possibility of SOD

which I had mentioned to him at the first consult and as some of you

may recall...at the time he poo poo'd the notion and said it's

usually used when doctors don't know what else to call it.....I

asked about an ERCP w/manometry...and he said we don't do that

here. So, when pushed by me...he finally said, I don't believe that

you have cp because your pain cannot be attributed to the minimal

changes I saw in your pancreas today...then he flip flopped and

said " I can't rule it out either....but in my opinion, you don't

have it because we would have been seeing more damage. " Soooooo, he

is now in the catetory of the DINKS!!! So, what do I do now? He

put on the release slip - return to work tomorrow and the one that

really got me!! RESUME ALCOHOL tomorrow!! I guess what I need here

is some BIG TIME reassurance and advice from you guys....PLEASE

HELP!! I mean, I know of some of you that CP wasnt' dx'd UNTIL the

performed an ERCP with manometry due to SOD!!! I'm about to freak

here!!! Please write back....I'm sooo confused right now!!! I KNOW

WHAT I HAVE!!!

thanks and sorry for this crazy message, but I just don't know what

to do now!!! I can't return to work...but if he isn't willing to dx

CP - I can't apply for SSID w/o a dx either right???

thanks