Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Hi Thanks for your input and I think what I need to do is to go back to UNC and see those drs. there . I have some names for what I might have and besides the head Neruo dr. that said my Transverse Myelitis is due to my RP. In fact I will call him to get an eye dr. up there to see and if they have any questions they'll be able to call on him as to what to do for any extra tests to run. It is a shame that your drs. didn't catch the problem sooner, blindness is one thing I couldn't handle and I was always thankful that I had good health when I was younger. Now I am very thankful that this bout of RP is NOT painful but it is hard to think of this condition I would may never go away It will be hard not to work again. I tell everyone that they shouldn't put off doing things before something happen , health wize. My Mom bought me this computer for this very reason, to find a support group for my RP and so glad I found this one, everyone is so nice and very helpful. I have feard from several people and gotten some names of what I might have wrong so I can ask them to check for them. Thanks again for the information. I'll let you know what I find out. your friend Sally Quote Link to comment Share on other sites More sharing options...
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