Re: Re: Severity of the disease/Sara gdattig5@...

[Guest guest]

Please let me know what your doc is trying to do to get the gargle. I know

its only been tested in Europe with good results, but I have not heard

anything about it in the US. I would be very interested in finding out the

possibilities. Thanks

Sincerely,

PR

>From: gdattig5@...

>Reply-To: cfparents

>To: cfparents

>Subject: Re: Re: Severity of the disease/Sara

>Date: Tue, 11 Nov 2003 09:59:33 EST

>

>In a message dated 11/11/2003 2:27:00 AM Central Standard Time,

>reamsfarm@... writes:

>Joe

>Sometimes people can also culture pseudomonas in a throat culture but it

>doesn't necessarily mean they have pseudomonas in there lung yet. My oldest

>keeps

>culturing pseudomonas in a culture but we have done two bronchoscopes and

>she

>has not yet cultured it in her lungs. We have done cultures in her sinuses

>and

>are finding it there. So even though they culture pseudomonas does not mean

>it is in there lungs it is just in there airways. This is why our doctor is

>doing everything he can to get the gargle for my oldest so it doesn't get

>into

>her lungs. We are hoping it happens by the first of the year. Deb A

>

>

>

[Guest guest]

In a message dated 11/11/2003 10:14:58 PM Central Standard Time,

sequoiaconsult@... writes:

Please let me know what your doc is trying to do to get the gargle. I know

its only been tested in Europe with good results, but I have not heard

anything about it in the US. I would be very interested in finding out the

possibilities. Thanks

Sincerely,

PR

He is trying to get licensed in the US so he can be give it to his patients.

He is still working on me but he is telling me that he is almost sure it is

going to go through. I HOPE SO!! But I will let you know what happens. His

biggest concern is if our insurance will pay for it because it is not FDA

approved

yet. But you would know unless you try. Deb A