Re: To Steve about getting results with Mds

[Guest guest]

Dear Steve and Deanna,

I can sooo relate to what you said Steve, about Mds and getting proper

treatment. There have been times I have had to just show up at Mds offices and

demand to see them. The office staff is none to happy to see me at these times.

One time I just stormed into the office and proceeded down the hall. I was going

to sit in my doctors private office, actually in his chair, until I could see

him. The office staff was running after me down the hall yelling at me, " He's

with patients who HAVE appointments " . I told them I didn't give a rats ass and

that I was not leaving until I talked to him. I was doubled over at this point.

They told me to sit in the waiting room and they would talk to him. I told them

they had 5 minutes or I was barging in again. Within 5 minutes he appeared and

took me to his office. To say the least, he helped me and within a week I was

in surgery. ER Mds I am also very nice to. But if they start the song and

dance about how my enzymes are not elevated or

get that clueless look, I just INSIST they call my doctor and my communication

with them pretty much stops. I tell them I know whats happening and if you

don't beleive me then thats your problem. Once they call my Md, then things

greatly improve. Don't put up with Mds who treat you like your a nut case. And

by the way, I am still very good friends with my Mds office staff. I am usually

a very nice patient until I get the run around. I apologized to them all and to

this day they still joke about it. The nice squeaky wheel does get the grease.

Don't be mean, just be persistant.

Hope everyone is having a good day.

Love,

W

Wisconsin

Steve Ashton wrote:

Dear Deanna: Yes. People really don't want to hear negative things. Everyone

seems to be pre-occupied with their own issues. I am finding that unless you

have been through a similar illness or problem, it is often hard to relate. That

is why I am beginning to be more and more comfortable with our group. It's great

to have other people to share with who have " been there, done that " .

As far as the problems with medical MDs and ERs, I just simply will not put up

with being denied proper treatment! I am always as courteous and respectful as

possible, but when I even begin to suspect a MD is acting in a prejudicial way

towards me (as though I am a drug seeking low life) I quickly set them straight

as to this disease and what my medical needs are. If that doesn't work, I turn

into " super New Yorker Steve " and demand to see someone else more competent. In

other words, don't take no for an answer, when the answer should be a definite

YES!

Warmest Regards

Steve

Deanna Tubb wrote:

You wrote: " Real or not,

I felt they were getting tired of hearing how sick I was, "

Steve, I feel the same way. My Mom has back problems from an auto

accident & has chronic pain, & we both decided to talk to each other

about our symptoms & talk about everything else to other people.

Even when someone asks how I'm feeling, I keep my answers short.

Sometimes I feel like I being punished for being sick. Losing my

marriage, job, car, appartment.........Then I get to a point where

everything seems to have clamed down, & it comes back & bites me in

the butt again. Trouble getting meds, horrible ER visits, no Rx

coverage..........Do you ever feel that way?

Hugs,

Deanna Tubb

New Mexico PAI Rep