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Re: Just want to talk

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Go to WWW.POLYCHONDRITIS.ORG

This site is by our Foundation. Think about joining it its only

$15.00 a year membership and you get a news letter and tons of info.

You can find a link to the Founation by go to that web site.

Sorry about Mom! Please dont think you will get it! That would be

VERY rare to get the same one.

P

in case I

ever have this disease

> Hello all. My mother has rpolychondritis....she does not have a

> computer so I want to get as much information as I can on this

> disease. My mother has this, my 2nd cousin and my uncle, and a few

> of my other relatives have polyarteritis...and since this seems to

be

> in the genes I want to know as much as I can for myself...in case I

> ever have this disease.

> My mother has very painful red marks or circles all over her

> legs...it gets hard for her to stand or walk. This disease seems

> like it is very touchy and tempermental...and anything will start a

> flare up...is there anyway to better control this...any advice

would

> be greatly appreciated.

>

> thankyou very much

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