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Re Delta f508

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Hi there,

Ainslie has the double delta f508. She is on constant daily

anitbiotic plus a heap of other stuff and it is all mainly for her

sinuses and digestive tracts. She does have puffers for her lungs but

this is mainly due to her sinuses acting up affects her lungs.

Ainslie has only been hospitalised for sinus cleanouts and she is now

11. I think the reason she has not had more problems is due to luck -

in coming into contact with bad bugs, and the fact that I keep her

VERY active and always have, ever since she could walk.

We cannot control what cf will do no more than we can control any

other health problems that may come along. My son Connor nocf and not

even a carrier has spent more time in hospital than Ainslie. Had a

bug settle in between his disks of his spine and the pain was

excruiating (sp?). So I try not to worry about cf too much ( can be

hard sometimes) because you never know what life will throw your way -

Good and bad.

Hope this helps

Terri

from Hobart mum to Ainslie 11 wcf and Connor 7 nocf

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