New members

[Guest guest]

I see we have a few new members in the group. I'd like to welcome you to the

best support group ever. Please feel free to jump right in and tell us a

little about yourself and ask as many questions as you want. We all learn by

your questions. There are so many people with so much knowledge in the

group. Someone will have an answer for you or at least lead you in the right

direction to find one.

We are here for you to vent, rant, rave, cry and laugh. We love humor and I

think that's what keeps us all going. As you will see, we are all differnent

and RP had affected us all differently. There are many medications used for

RP and you will see that the same one will not work for all of us.

Hang in there and just remember RP is treatable. Many of us live normal

active lives.

But remember too that prompt treatment is the key and that damage can be done

with every flare.

I'm glad that you found us and hope to hear from you soon. Looking forward

to gettng to know you all better.

Oh, by the way, I am 50 and live in Calif. I have been dx with Rp since

1999. I mainly flare in my ears, nose and ribs. I am recovering from an

aortic valve replacement due to RP, but am doing great and I know I will feel

100% better.

Again welcome and please feel free to post whenever you want.

hugs