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Hi ,

I am an aromatherapist- also with HepC...going the natural route in

treating. I used to have horrible pain too. I am actually feeling great

now. I make formulas for people with Fibromyalgia that interferes with

sleep all the time. Is that when it is worst? Are you doing any

exercises/ stretching? Have you focused on diet/nutrition? I'd be happy

to talk to you privately...I could make you a remedy or suggest some

things you could try if you like.

I can also send some general recipes/suggestions here if others are also

in need, I just prefer to work with people as individually as possible.

Love,

Whole Life Essentials /Whole Life Coach

http://www.wholelifeliving.com

FREE monthly newsletter!

Click the link above to find out what all the excitement is about!

On Thursday, September 18, 2003, at 01:25 PM, Pegasus.realm wrote:

> Okay... I can not take this any longer.

> I have had a flare up of a problem that is just not going away and is

> sending my life into total ruin.

> Now to be honest, I have both Fibromyalgia and Hepatitis C and I know

> either might be causing this, or it might be both or... arrrgh who the

> heck knows anymore?

> It's sleeping!! I can't stay awake long enough to get anything done. I

> sleep in " naps " of anywhere from 1-7 hours in a clip. But I am sleeping

> a total of like 18 hours a day!!! Even if I slept a full 10 hours

> almost, with very little interruptions, within 3 hours of being awake,

> I am falling asleep again. and even the hours I am awake, I am so out

> of it I am almost useless.

> I am on Methadone, Nuerontin and Skelaxin for the FMS and take SAM-e

> for the Hep C, all of which I have been on for well over a year and was

> not having any problem like this before with them. It all started about

> 6 weeks ago when I had a flare up and felt sick and miserable... which

> happens from time to time but I usually snap out of it after no longer

> than 2 weeks. Then in the 4th week, I had a week long cluster migraine

> headache and slept almost around the clock for days on end... and now I

> just can't seem to wake up!

> My doctor is baffled as well... usually if I get a Hep C flare up

> causing fatigue, I just up the SAM-e dosage and a week later, I feel

> fine... nothing is helping this.

> Any Ideas?

>

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I wish I could help. My dr put me on wellbutrin for depression which had the added effect of being a mild stimulant. I think that helped me a little bit. I know the methadone and neurontin can make you sleepy, but since you've been on it so long already I guess that can be ruled out. My wife is on medication that makes her sleepy for rhuematoid arthritis and her dr prescribed adderall and that seems to help her. Good luck and I'll keep you in my prayers. -dz-"Pegasus.realm" <Pegasus.Realm@...> wrote:

Okay... I can not take this any longer.

I have had a flare up of a problem that is just not going away and is sending my life into total ruin.

Now to be honest, I have both Fibromyalgia and Hepatitis C and I know either might be causing this, or it might be both or... arrrgh who the heck knows anymore?

It's sleeping!! I can't stay awake long enough to get anything done. I sleep in "naps" of anywhere from 1-7 hours in a clip. But I am sleeping a total of like 18 hours a day!!! Even if I slept a full 10 hours almost, with very little interruptions, within 3 hours of being awake, I am falling asleep again. and even the hours I am awake, I am so out of it I am almost useless.

I am on Methadone, Nuerontin and Skelaxin for the FMS and take SAM-e for the Hep C, all of which I have been on for well over a year and was not having any problem like this before with them. It all started about 6 weeks ago when I had a flare up and felt sick and miserable... which happens from time to time but I usually snap out of it after no longer than 2 weeks. Then in the 4th week, I had a week long cluster migraine headache and slept almost around the clock for days on end... and now I just can't seem to wake up!

My doctor is baffled as well... usually if I get a Hep C flare up causing fatigue, I just up the SAM-e dosage and a week later, I feel fine... nothing is helping this.

Any Ideas?

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  • 4 years later...

Have you tried a electric blanket. We got one for Anni and it has really helped.

We ordered it online and it is the safest and most washable on the market. Just

thought I would ask.

Cynde

sleep help

Can anyone tell me how to help Hannah sleep? She has been flaring like crazy

and takes hot baths at bedtime and even in the morning (which really tells me

she is hurting). She also looks terrible when she gets up. She looks very

unrested and says she's feeling very restless during the day because she is so

tired. She takes her bath right before getting in bed. Says she falls asleep

right away, but wakes up in the middle of the night, every night, and can't get

back to sleep. I asked her what she is thinking about when she wakes up

(thinking she was stressed over something) and she said I'm thinking why am I

awake!!!! She does admit to being in pain when she wakes up, but does not think

the pain is waking her up. She says life is good (except for the flare, but

she's kind of used to that as sad as that is) and she is not stressed out. She's

got lots of exciting, fun things going on right now so I have agree its not

stress.

Any suggestions would be great! I just ordered an alternative down pillow top

mattress topper for her bed (no feathers, because of the asthma) thinking maybe

its her bed.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

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This might sound really strange, but no. I promised my mom I would never

purchase an electric blanket or mattress pad. One her very good friends had a

devastating house fire caused by an electric blanket and she is very against

them (I'm sure it was old and not as safe as the new ones), but I don't want her

worry more about Hannah than she already does. Strange I know, but she's my

mom.

Sending prayers & happy thoughts,

Beth :-)

sleep help

Can anyone tell me how to help Hannah sleep? She has been flaring like crazy and

takes hot baths at bedtime and even in the morning (which really tells me she is

hurting). She also looks terrible when she gets up. She looks very unrested and

says she's feeling very restless during the day because she is so tired. She

takes her bath right before getting in bed. Says she falls asleep right away,

but wakes up in the middle of the night, every night, and can't get back to

sleep. I asked her what she is thinking about when she wakes up (thinking she

was stressed over something) and she said I'm thinking why am I awake!!!! She

does admit to being in pain when she wakes up, but does not think the pain is

waking her up. She says life is good (except for the flare, but she's kind of

used to that as sad as that is) and she is not stressed out. She's got lots of

exciting, fun things going on right now so I have agree its not stress.

Any suggestions would be great! I just ordered an alternative down pillow top

mattress topper for her bed (no feathers, because of the asthma) thinking maybe

its her bed.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

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Hi Beth,

I certainly understand your concern about an electric blanket.? I used one for

last winter when he was having problems at night.? I would turn it on a

few minutes before he went to bed - then he would be nice and warm and would

fall asleep with the blanket on.? Before I'd go to bed, I would go in his room,

turn off and un-plug the blanket.? In the morning I would get up, go in his room

and plug it in and turn it on, that way it would warm him up before I woke him

for breakfast.? Just a thought - not trying to convince you of something that

you aren't comfortable with.? His was a good one that was also washable - though

after several washings by the end of last winter it had quit working.? He has

managed this winter without one.? I hope that you find something that helps

Hannah sleep.? Lot's of folks still use warm milk - though not something I ever

tried.? Maybe a relaxing herbal tea??

Val

Rob's Mom (10-systemic)

Re: sleep help

This might sound really strange, but no. I promised my mom I would never

purchase an electric blanket or mattress pad. One her very good friends had a

devastating house fire caused by an electric blanket and she is very against

them (I'm sure it was old and not as safe as the new ones), but I don't want her

worry more about Hannah than she already does. Strange I know, but she's my mom.

Sending prayers & happy thoughts,

Beth :-)

sleep help

Can anyone tell me how to help Hannah sleep? She has been flaring like crazy and

takes hot baths at bedtime and even in the morning (which really tells me she is

hurting). She also looks terrible when she gets up. She looks very unrested and

says she's feeling very restless during the day because she is so tired. She

takes her bath right before getting in bed. Says she falls asleep right away,

but wakes up in the middle of the night, every night, and can't get back to

sleep. I asked her what she is thinking about when she wakes up (thinking she

was stressed over something) and she said I'm thinking why am I awake!!!! She

does admit to being in pain when she wakes up, but does not think the pain is

waking her up. She says life is good (except for the flare, but she's kind of

used to that as sad as that is) and she is not stressed out. She's got lots of

exciting, fun things going on right now so I have agree its not stress.

Any suggestions would be great! I just ordered an alternative down pillow top

mattress topper for her bed (no feathers, because of the asthma) thinking maybe

its her bed.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

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Beth,

goes through this at times. Her first episode went on for a year

or so. She would be so wore out when she woke up every morning. She would say

she was waking several times in the night.

My Sister suggested I take her to a Lung Dr as she seen. This Dr said

looked awful. Asked about her sleeping. He sent her for a Sleep Study

and this brought light to 's issues.

Through this we found out has Narcolepsy and Sleep Apnea.

never got into a Deep Sleep either.

He said there's 4 or 5 stages of Sleep. When a Person doesn't go into

each stage they deprieve their body of a good nights sleep. was only

going into Stage 2 of sleep. Once we found this out he wanted to keep a

record of her sleep. He also did some research on JA patients and sleeping

Disorders. His findings were JA kid's have Sleep issues.

So he contacted the Rhuemy and they put on Benadryl for 2 weeks to

see if this would help. But it didn't. We went to trying a few thing's.

Make sure the room is dark and no disturbing sounds are there.

Make sure the bed is comfortable

Make sure the room is not too Hot or too cold.

Take a Hot bath before bed

Read a book

Never lay in bed if you are not sleeping... Get up and lay on a Couch or

chair.

Make the room just for sleeping

Try Music Therapy with soft sounds

Some people can sleep better if a TV is on. Some can not sleep with a TV on

Colors of a bedroom can also change sleep patterns. Soft colors help as

well

Try anything that is comfortable.

This may sound alittle off but if the child sleeps better on the couch

or in a recliner then allow the child to sleep there.

use to sleep better with her legs across my hips. lolol. Today

she may sleep in her own bed but other days she may end up in my bed as it is

How she is feeling.

There's still times when she may sleep 12 straight hours and wake for 4

hours and still sleep but it does not mean she is having restful sleep.

I have more thing's to try with helping a child sleep.

Robbin

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

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Beth..I can totally understand why your mom would feel that way after such a

devastating loss. I have my reservations about them myself. I checked these out

very carefully and only bought one with the idea that it could help my

grandaughter walk better in the morning. For me it was a decision too.

Her mom turns on the timer to come on just one hour before she wakes up in the

am. That way it warms her right before she has to get up.

It is not strange..but a warning worth listening to!

Hugs,Cynde

sleep help

Can anyone tell me how to help Hannah sleep? She has been flaring like crazy

and takes hot baths at bedtime and even in the morning (which really tells me

she is hurting). She also looks terrible when she gets up. She looks very

unrested and says she's feeling very restless during the day because she is so

tired. She takes her bath right before getting in bed. Says she falls asleep

right away, but wakes up in the middle of the night, every night, and can't get

back to sleep. I asked her what she is thinking about when she wakes up

(thinking she was stressed over something) and she said I'm thinking why am I

awake!!!! She does admit to being in pain when she wakes up, but does not think

the pain is waking her up. She says life is good (except for the flare, but

she's kind of used to that as sad as that is) and she is not stressed out. She's

got lots of exciting, fun things going on right now so I have agree its not

stress.

Any suggestions would be great! I just ordered an alternative down pillow top

mattress topper for her bed (no feathers, because of the asthma) thinking maybe

its her bed.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

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The new electic blanket has a timer that allows 10 different timed on and off

settings. Seems they must have know that moms were having to turn them off and

on all the time:))

it works great and is really washable

hugs,Cynde

sleep help

Can anyone tell me how to help Hannah sleep? She has been flaring like crazy

and takes hot baths at bedtime and even in the morning (which really tells me

she is hurting). She also looks terrible when she gets up. She looks very

unrested and says she's feeling very restless during the day because she is so

tired. She takes her bath right before getting in bed. Says she falls asleep

right away, but wakes up in the middle of the night, every night, and can't get

back to sleep. I asked her what she is thinking about when she wakes up

(thinking she was stressed over something) and she said I'm thinking why am I

awake!!!! She does admit to being in pain when she wakes up, but does not think

the pain is waking her up. She says life is good (except for the flare, but

she's kind of used to that as sad as that is) and she is not stressed out. She's

got lots of exciting, fun things going on right now so I have agree its not

stress.

Any suggestions would be great! I just ordered an alternative down pillow top

mattress topper for her bed (no feathers, because of the asthma) thinking maybe

its her bed.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

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Beth

I went to bed tonight about 9. woke me when he came to bed about 20

minutes ago, and I hurt so badly that I had to get up for awhile. Moving around

and stretching my joints helps with the pain. Usually, I take tylenol or an

nsaid and throw my rice packs in the microwave. Sometimes I never really go back

to sleep, other times I do. Bless Hannah's heart. I haven't been keeping up ,

but know you are working on the next step...have you decided anything yet??

and Rob 18 JAS

sleep help

>

> Can anyone tell me how to help Hannah sleep? She has been

> flaring like crazy and takes hot baths at bedtime and even in

> the morning (which really tells me she is hurting). She also

> looks terrible when she gets up. She looks very unrested and

> says she's feeling very restless during the day because she is

> so tired. She takes her bath right before getting in bed. Says

> she falls asleep right away, but wakes up in the middle of the

> night, every night, and can't get back to sleep. I asked her

> what she is thinking about when she wakes up (thinking she was

> stressed over something) and she said I'm thinking why am I

> awake!!!! She does admit to being in pain when she wakes up, but

> does not think the pain is waking her up. She says life is good

> (except for the flare, but she's kind of used to that as sad as

> that is) and she is not stressed out. She's got lots of

> exciting, fun things going on right now so I have agree its not

> stress.

> Any suggestions would be great! I just ordered an alternative

> down pillow top mattress topper for her bed (no feathers,

> because of the asthma) thinking maybe its her bed.

>

> Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

>

> Sending prayers & happy thoughts,

> Beth :-)

>

>

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  • 1 year later...
Guest guest

I've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into REM

sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess.

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Guest guest

Well that's out for me. My Gastro issues are legendary in these here parts.

sue

From: hvn8bnd@... <hvn8bnd@...>Subject: RE: Sleep Help Date: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------------------------------

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Guest guest

Try some celery if you can eat it (referring to gastro problems).

Anne W

RE: Sleep Help Date: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------------------------------

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Guest guest

Anne,

I loooove celery. I eat lots of veggies. They do not bother my gut. I know what is wrong with my gut. I have too much yeast, which we are working on and I have an overgrowth of a bad bacteria. It responds to an antibiotic that is used for Malaria. However after three months or so I am back to same old issues. The thing that has helped my gut the most has been eliminating bad foods from my diet. Sugar, soy, wheat, grains, nuts, beans, diet soda, artificial sweeteners, dairy { I can eat goat products}, caffeine, no beef,chicken or pork that has not been grass fed.....long list.

However I don't have to run to the bathroom anymore. I still have issues that my Naturopathic doctor is slowly working on. Right now I am working on the yeast issue. Causes huge gut issues. Among other things.

I will continue to eat my celery with me sea salt. It has always been a favorite.

hugs,

Sue

From: hvn8bndverizon (DOT) net <hvn8bndverizon (DOT) net>Subject: RE: Sleep HelpDate: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------ --------- --------- ------

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Guest guest

Gotta love that sea salt. On my edamame, I use a Himalayan salt that has a bit of iron in it (found it at the health food store).

On another problem, your posts seem to get cut off on the right hand side, what is that??

Anne W

RE: Sleep HelpDate: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------ --------- --------- ------

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Guest guest

Anne,

My computer minded/ software company owning husband cannot understand what is going wrong.

He will have to look at the computer. Hate the

computer thing. Always an issue

My horses get Himalayan salt. The have regular salt and Himalayan salt. They chose the Himalayan most of the time.

We will have to sort out my problem. Thank you

for telling me about it.

Sue

From: hvn8bndverizon (DOT) net <hvn8bndverizon (DOT) net>Subject: RE: Sleep HelpDate: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------ --------- --------- ------

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Guest guest

I know what the cut-off message is all about. In your membership profile, you have selected to receive your emails as "full-function" (or something like that). If you edit your profile and change that to "traditional," the right side will not get cut off anymore.

Pam

RE: Sleep HelpDate: Wednesday, April 1, 2009, 7:08 AMI've found that 5HTP does wonders for me as far as sleep goes. They say you

shouldn't take it if you have gastro-intestinal difficulties. I will go into

REM sleep on a regular basis if I have taken at least 3 tablets a day, I wake up

feeling refreshed and earlier than without the help. Now if only I could find

something to rid my body of pain! easier said than done I guess. ------------ --------- --------- ------

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  • 5 months later...

Any Suggestions?

My son is 4 and half months old and we just got the DOC band on Thursday. He

used to be the best sleeper. Now he wakes up every 20 min. screaming. The only

way to get him to stop is to take it off. Anybody have or had this problem.

Will he get used to it or do I need to get it refitted? There are some red

spots but they go away quickly.

Thanks,

(mother of 4.5 months old, 3 days in the DOC Band)

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  • 4 weeks later...

,Actually SMR (which should always be done with eyes OPEN) is helpful for falling asleep, not necessarily staying asleep.  Training down the fast activity in the right-rear quadrant (if you have alpha/theta ratios around 1.5 or higher with eyes closed at P4/A2) should help.

Pete-- Van Deusenpvdtlc@...http://www.brain-trainer.comUSA 305 433 3160BR 47 3346 6235

The Learning Curve, Inc.

On Fri, Oct 9, 2009 at 2:20 PM, akamin2@... <akamin2@...> wrote:

 

Hi Trainers,

I have been bothered by waking up earlier than normal for the past few days and wanted to see if there is some way that I can use NF to help smoooth out any bumps in my brain. This morning I awoke at 5:15 and couldnt get back to sleep so I pulled out my notes from Petes training and saw that he recommended doing an SMR up and Theta inhibit at T4/Fz (1ch bipolar I assume). So I tried it EC, but too early to tell any results. I was wondering if anybody has any other recommendations for NOT waking up early from sleep. As far as a brain type...I am a bit of a beta head with a little too much beta in the back right, alpha seems fine and temporals are a little hot (primarily due to raising RAD children). Other than that I am fairly balanced.

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