Guest guest Posted November 16, 2003 Report Share Posted November 16, 2003 e, That seems to be the biggest debate around here. When a cultured PA's in the middle of October, her doctor said IVs, but when he saw a's face he went the Tobi/levaquin/zithromax/route. I have been letting a inhaled tree tea and manuka oils, which is lema oil. There is enough evidence to believe that neg gram bacteria (PAs are neg gram bacterias) do not find a happy environment to grow on when patients inhale tree tea oil. If you would like go to manukaoil.com and read a little about essential oils, do so. I copied and pasted the following from their website. And as Kim always says take your chelated magnesium and probiotics. General Information Product Name: Lema Oil Product Description: Blend of Leptospermum Scoparium Oil and Melaleuca Alternifolia Oil Source: Leaves and small stems of wild East Cape Leptospermum Scoparium (Manuka) and leaves and small stems of Melaleuca Alternifolia (Tea Tree). Functions: Antibacterial, Antifungal, Anti-inflammatory, Anti-acne, Antihistamine, Antiallergenic, Antimicrobial Common Applications: Manuka Tea Tree In Cosmetics: Such an oil could be used for its antimicrobial properties, and because of low use rates, any natural perfume associated with it would be diluted out. In Medical Applications: Essential Oils often help the healing process so Lema Oil being a broad spectrum, highly potent, low toxicity, antimicrobial could find many uses where tropical applications to combat infections are called for: Such applications could include impregnation of gauze applied to trauma sites and skin infections. In Skin Antisepsis: In critical areas such as hospitals, it is increasingly vital to have access to highly effective, low toxicity broad spectrum preparations. Lema Oil can be incorporated in scrubs and hand sprays. Increasingly food handlers are transmitting infection. Because of its high potency and low toxicity Lema Oil offers an ideal active ingredient where repeated use calls for an effective antimicrobial which will not cause skin problems. > I'ma little confused...which seems to be happening quite frequently > lately. Anyway, cultured PA the beginning of October. Her dr. > said he wanted to treat it aggressively, so she did TOBI for 28 days > along with Cipro. So what exactly does agressive mean? One would > think that IV treatment was more aggressive than inhaled treatments. > What about the people who have posted whose docs put them on TOBI > for three months. Thast seems pretty aggressive to me. Oh I worry > so much! I just want the PA to go away. He said that her cultures > grew " significant amounts of PA " , what the heck does that mean? > I sure hope you find some answers Joe because it seems like nobody > has any answers, they are just guessing. > > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 Hello, I'm from Montreal, and here when they say agressive treatement, it is (for my daugther) inhaled tobramycin 80 mg / 2 ml + 1 ml N/S (They either put the solution or vantolin for kids who react to tobramycin). When she first cultured PA (she was almost 2 years old), they put her on tobramycin not the same as TOBI 28 days on 28 days without..., it is, I think a milder kind for little ones mixed with a solution (I think it is salty water solution) she took it until few negative cultures (she has cultures every 3 months) after they put her on as soon as she gets a start of a cold or fever or weight lost,last time they kept her on because her X-Ray showed a congestion on her right lower lung even if she did not culture any PA. What I'm concern about is that almost all of you are on double antibiotics when PA is cultured... I know here in Montreal they do that too sometimes but next time I'll ask why they don't prescribe it to my daugther, maybe because Tobramycin worked well alone and she never cultured PA again after taking that med... Question: For those of you who have young kids (my daugter is 3) that cultured PA, Did it come with a cought? My daugter never coughed even after physiotherapy... She does clapping and PEP mask, 2 sessions per day of one or the other and she never cought. I use essential oil too, I have an electric diffusor that we use with specific tempons with a few drops on. I personnally don't like using water because PA grows in tab water and when this tab water evaporates, I'm skared that my daugther can breath it (I'm probably pussing it too far and anyway if essential oil kills PA the water should be OK but I'm not confortable with water (that is a reason why I always do tobramycin after bath time and I often put essential oil in her bath). I like using Tea tree and lavender but I'll go see for manuka, I did not know about this one. I also give her a low dose of oral GHS since she cultured PA and she has less colds and she gained weight with it. I know opinions on oral GHS are different but my daugther's doc knows about what she takes and he is OK with the dose. My phobia of water made me think of something maybe weird and maybe you'll think I'm stupid...but it bugs me. Our house is in the country so we don't have treated water trought the city, we have, I think it's called and artesian well in english, I'm french if you did not notice... So I'm wondering if our water is worst for CF than javelised treated water because it is more stationnary water so probably more PA in it... Am I crazy to think about things like that??? We had it test for drinking purpose and it is OK but they don't test PA... and we don't even drink it, we drink botled water but the steam when you run a bath, the water that stays in the drain... Caro > > I'ma little confused...which seems to be happening quite frequently > > lately. Anyway, cultured PA the beginning of October. Her dr. > > said he wanted to treat it aggressively, so she did TOBI for 28 > days > > along with Cipro. So what exactly does agressive mean? One would > > think that IV treatment was more aggressive than inhaled > treatments. > > What about the people who have posted whose docs put them on TOBI > > for three months. Thast seems pretty aggressive to me. Oh I worry > > so much! I just want the PA to go away. He said that her cultures > > grew " significant amounts of PA " , what the heck does that mean? > > I sure hope you find some answers Joe because it seems like nobody > > has any answers, they are just guessing. > > > > > > e Quote Link to comment Share on other sites More sharing options...
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