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Barbara's questions

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Yes Barbara,

I have gotten totally off the Pred. Have been for several years and no, you

are not in la la land thinking that this disease will subside. I did it

after 9 years and it can happen to you too.

One very very important suggestion though, you mentioned hoarseness. Please

see an ENT immediately about this. If you need info to take with you about

throat involvement and RP let me know and I will email you info on it.

Email me at: susuw@... and I will gladly provide info that probably has

nothing to do with you, but something for the Ear Nose and Throat doctor to

keep for reference to help keep a check on you. The throat area is the most

important thing to take care of when it comes to RP, so please find a good

ENT and make an appointment immediately, just to rule out RP in that area. I

can not stress this enough.

So glad you are asking questions, ask all that you have. You will find a

wealth of knowledge here and make some great friends too. These people are

my family............

Again Barbara, welcome to our support group, ask all the questions that you

have.

W

>>>>>>>>>>>>>>>>>>>>>>>

Has anyone had sucess

getting off Pred.? Does any one have any suggestions to help supress

this disease - diet etc?

Am I in la la land thinking this disease will subside any and I will

be able to get off Steriods?

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