Re: craniofacial surgeon referral

[Guest guest]

The doctors are most useful for insurance reimbursement; if the

insurance pays for a helmet, they will most certainly need a

prescription. So if the pediatrician won't give you one, you still

need the specialist.

Seven months is a fine time to take the lead and heel the doctors,

though: good for you. If they act confused, do the math for them.

I was just the other day doing these calculations for another

correspondent offlist:

7 months age

2 weeks to get the orthotist

2 weeks to get the helmet

+4 months average length of treatment

=========

12 months, the age at which perfect results supposedly become less

likely as a rule.

--

Thad Launderville

Montpelier, vT

Clara age 18 months, STARband since 8/10

[Guest guest]

It's good to hear you are being proactive. I know from experience that

I had to really fight to get any help from my HMO!

As far as seeing the cranifacial drs... it could not hurt. My dd's

craniofacial drs did not take xays or scans. We got those ordered from

the orthopedic and neurologists.

II would say that if you can see one then go... they look at babies

heads all day.

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

craniofacial surgeon referral

The pediatrician said the parallelogram shape we saw on our 7-month-old

was natural until I printed plagio info from the web to show him. He

then got us a referral to a craniofacial surgeon, but that's dragging

on due to paperwork issues, " they forgot to fax this/that/etc. " I knew

this would happen so we went to Cranial Tech on our own, and they said

it's classic plagio. We're paying the $3K out of pocket because I don't

want to wait anymore. However, do you think it's still worth trying to

see the craniofacial surgeon since I have a referral? Part of me says

yes, in case there is some complication that Cranial Tech didn't see,

but part of me wonders if it'll involve x-ray

s and other discomfort for

baby, along with confusion for the surgeon ( " why did you start

treatment already? " ), insurance ( " we're not paying for the surgeon

consultation if you're going outside of our standard procedure " ), and

the pediatrician ( " why do you still want to see the surgeon if you're

going through Cranial Tech already? " ).

PS This group was a blessing to find, especially when the doc obviously

hadn't even heard of plagiocephaly; I felt so alone prior to " meeting "

you people in the same boat.

[Guest guest]

Oh yes, we had a prescription. The OT went to bat for us with the

pediatrician. Because the two disagreed, we ended up having to pay

out of pocket for her services, but we just shut up and went.

--

Thad Launderville

Montpelier, VT

Clara age 18 months, STARband since 8/10

On Oct 6, 2009, at 4:43 PM, nwilkens2275 wrote:

> Did you not need [a prescription] to get a band for your daughter?

> I would find that very odd. I have been on this board for nearly 2

> years and never heard of anyone receiving a band without a script.