Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Here is a post from Russ and his dr visit. He gave me permision to post this and see if you have any in put for him. At the end of the post is his post from today and hearing from Dr. Herman. << Hi, , I had my Ophthalmologist visit this afternoon, and it was very eye opening - - no pun intended ! I went in to the eye institute, and discovered that I had been there in 1991. I remembered the visit as having to do with having a small blackhead cyst removed from my lower eyelid. Anyway, I had to fill out new paperwork. So I checked all the boxes that applied to me, and searched for a place to properly put the autoimmune disease info. The closest place was the arthritis section, so I drew a line through the questions, and wrote my own narrative. I listed all my medications ( 9 ) and then in the space for current problems I stated all about the flare and such, and how the antibiotic eye drops did not help. I don't remember if I told you, but on Tuesday morning, I took 30 mg of Pred, because I did not have any Pred eye drops, and could not get to a doctor before Thursday. I figured I would go ahead and take the tablets, rather than waiting for drops. Well, by Tuesday at noon, my eyes were no longer sensitive to light, and by Tuesday evening, my eye was noticeably better. Wednesday morning, I took another 30 mg Pred, and by Thursday night, most of my eye was white, again. Today I took 20 mg, and went to see the Ophthalmologist. The eye technician took me to a room and after some questions, put in numbing drops and did the eye pressure test. Right eye was 17, which was in the normal range, and the left eye was 21, which was the eye with the problem. She said both reading were OK. She had heard of RP, which was surprising, and knew about eye involvement. Then the doctor came in {{ looking like he was about 15 years old }} and introduced himself and looked at my chart. Then he looked at both eyes with the eye scope, and asked, " Have you been around anyone with pink eye? " I said, " Ah ...... no. " Then he said, " Well, your eye is still somewhat irritated. So the drops worked well? " I said, " No - - - they did not work at all. I have an autoimmune disease, and I .... " " Oh - - - what kind of autoimmune disease? Is it written here? " He obviously did not read the chart. I said, " yes, it's all there. " then I told him what I had done with the Pred, and he said that I should not have taken it upon myself to medicate without a doctor's approval ! ! I then said that my eye was very red on Monday, and by Tuesday afternoon, after the Pred, it was noticeably better. He then looked at my eye again, and said,that the " Pred was probably the right thing to do. " SURPRISE ! ! ! ! Then he said I should get off the Pred, and take 600 mg 4 times a day. of Motrin, because Pred drops would cause other side effects. He was calling my diagnosis pre-iritis, and if it re-occurred, he would call it regular iritis. He did not want to prescribe Pred drops until he could evaluate my eye in another flare. He said he did not want me to " medicate " myself without another exam. He said to try the Motrin therapy for a while, and come back in three weeks and he would see how my eyes were then. I said that it would take me three weeks to get off the Pred, so by coming back then, any improvement would be from the Pred not his Motrin therapy. He said he realized that but to come in anyway. When I went to the front desk to pay the co-pay and schedule the next appointment, I discovered that he is off the entire month of July, so that's why he wants to see me before then. So, that's my story about the great and powerful Ophthalmologist ! ! I am still waiting for another answer from Dr. Herman, and I think that I will ask him to recommend someone else. What do you think? Sorry to take so lung with this narrative, but I want to keep you informed. Please let me know what you think. In His Service, Russ >> A Post from him today. Hi, , Post away ! ! Any information gathered is better than none. Dr. Herman replied, and gave me the name of a specialist for uveal tract disease. Have you heard of this condition? Anyway, Dr. Herman is directing me to taper the Pred as previously done, and see if the eye re-flares. He also stated that I should not have medicated myself, because that masked a more accurate evaluation. I agree, but when it comes to your eyes, ....... well, I just wanted to do SOMETHING ! ! ! Quote Link to comment Share on other sites More sharing options...
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