Delta f508

[Guest guest]

Hey, can anyone help me on this mutation thing were all reading

about.All I remember is Tyler's old cf nurse coordinator said Ty has

delta f508.Is that the worst one or something(gosh plz dont let

there be more I need to worry about, I dont know where I'll fit it

into my " worry schedule " )?So far he's never had to be admitted for

lung junk, Thurs. will be the 1st time, and the cf coor. told me its

because he just had his gallbladder out and the anestesia(sorry i

know i really hacked this word) had this effect on his lung which is

not out of the ordinary.His g.i. problems on the other hand are

horrific.He's always got some kind of liver, enzyme, gallbladder,

whatever issue going on, but never anything too severe.

And while were at it, how come we can clone a @*% & #$ cow but we

cant find a cure for this nightmare of a disease.Is there anything

even close coming?ANY hope?I mentioned in the previous post how

awful i am at sugar coating anything, so there just isnt any talk of

a cure in our home.I have just tried to keep up with the here and

now, but really, where are they(whomever " they " might be) going with

this?I heard something about gene therapy is this the one you would

have to go be admitted every 3 mos. or so for?I'll tell you, I

REALLY miss the children's hospital in Michigan, this one here in

Florida just seems like, well, I guess not so on top of things as up

north.

Sorry I keep writing so much but evidently I've had more questions

and concerns than I thought.

Patty, mom to Ty, 8, wcf & 2wocf