To

[Guest guest]

Hi there,

No, I don't eat oats. You have to remember that I had a coeliac

diagnosis in 1988 after which i followed the strictest form of the

GF diet. Were you actually advised to follow GF diet or did you just

try it and find it helpful? Have you told Dr Lehman about your diet

and, if so, what did he say? I'm just interested as my specialist

tends to think it was a wrong diagnosis in 1988. I have obviously

had CP all my life and it seems very unlikely that I also had

coeliac disease. The GF diet certainly helped at the time though and

I'm going to be very careful about reintroducing gluten.

I certainly might try oat products now. When I first went on the GF

diet in 1988 it did help a lot but I still got attacks from time to

time (not surprising as I has undiagnosed CP!) and I was then

advised also to cut out lactose-containing foods. Coeliacs sometimes

have difficulty in digesting lactose because they produce too little

lactase. This led to a very great improvement. It was probably

because it meant a big reduction in fat consumption as cheese was my

favourite food at the time, as well as Greek yoghurt, which is

usually high in fat content. Since my CP diagnosis (definite as

there are extensive calcifications throughout the pancreas and I

appear to have hereditary CP as my mother had the disease and I've

been ill since childhood) I have been able to eat cheese again

provided I take Creon. I eat small amounts and mostly the low-fat

versions. Being able to eat a little cheese helps to make up a bit

for not being allowed any alcohol at all!! I miss that red wine on

Friday evening to relax!

With good wishes for a speedy diagnosis etc. and I do hope you feel

well soon. I too know just how much this condition affects social

and family life.

Fliss