Fliss

[Guest guest]

Yes, I follow a gluten-free diet. I got my diagnoses about 1 month

ago when I had an ERCP done with Dr. Lehman in Indiana. I am in the

US and I am finding lots of gluten-free websites that deliver foods

right to your door. There is also a grocery store about 35 miles

from my house called " Wild Oats " . They carry gluten-free products

and organic as well. I don't have an official diagnoses of CP,

yet. I say " yet " because I believe that I may have it. I have had

many attacks that landed me in the ER room (unfortunately most of

the time they didn't check my panc. enzyems, only the liver). I

also have SOD (sphincter of oddi dysfunction). Both my bile duct

and panc duct had very high pressure and had to be cut open in order

to drain. It has been since March 24th since my ERCP and I am back

to having pain on most days. Some days the pain is mild, some days

I can't get out of the house. You know how that goes. I am suppose

to call Dr. Lehman in approximately 3-4 months and let him know how

I am doing. He was going to aspirate some panc juices from my

pancreas to check for early CP but he didn't do it because he did

the cutting of the sphincter and took 6 biopsies. I suffered an

attack after the procedure too. I really appreciate all of the

posts on this board. I read them every day, I have to constantly

remind myself that I am not alone with this. I feel like I am in

the same boat as Tammy, who does not have the diagnoses of CP yet,

but knows that something is not right with her insides. Also wanted

to let Sonja know that I feel trapped some days too. I also feel

that my family gets sick of hearing about my pain, etc. I know in

my heart that they really care but It is just so frequent that I am

in pain and having to take pain meds. I also wanted to ask you, do

you eat any Oats, or oat flour, in your diet? Thanks for your

response.

Take care