Re: Re: Advice on following up with CT

[Guest guest]

Hi ,

Thanks so much! My complaint is that they said they would band when

they couldn't. It got my hopes up. Also, they pointed out some

additional problems, and now I see them. I'm more upset about 's

head than before we went for the eval! Also, I find it strange that

the clinician who actually saw said we can try a band. The other

people never saw him, only pictures. I like your idea of paying for

the scan. My husband asked about this, but they said they didn't need

it. One thing about 's Starband scan that is better than the other

scans I've seen is that at level 3 the max line is closer to 0

degrees. My husband wonders if this has something to do with why they

cannot do the band.

I sent 's Starband scans with my husband to work, so he can send

them.

One thing that disturbs me is why the forehead has not improved and

there has been growth in this area. It actually got barely worse

between the first two scans. I cannot blame the helmet, since this

includes the 2 weeks we waited for the helmet. His forehead is very

mild, but I see the bulge and it seems it should be able to improve.

My husband is going to talk with our ortho again about this.

Thanks again,

Kathy

nwilkens2275 wrote:

Hi-

Have you posted any pictures of your son? If not, would you be willing

to so we can take a look? My guess is that his asymmetry is too mild,

or there is something about his head shape, that will not allow for a

proper fit of the band. If there is not a certain amount of asym, they

can't get good holding points to make the band effective. If it's not

going to be effective, they won't make the band, otherwise you'd be

shelling out 3600 bucks for nothing. I actually think it's a good

business practice because people have claimed that CT is just out to

get our money, but this is a perfect example of how they don't just

want the money, or they would have just made the band in the first

place. All the clinics answer to the corporate office in Phoenix. Maybe

you could pay out of pocket to get a DSi scan done and have them send

it to corporate to get their opinion and a better explanation as to why

they can't make it. That would probably be your best bet.

Please keep us posted. I'd be interested to know the reasoning as well.

Jake-3 (DOCBand Grad 9/08)

>

> Hi,

>

> As everyone has probably read, we tried to reband with CT in

southern CA

> and they said they couldn't make a band. I'm extremely upset,

> especially since at first they said they would. After they said

they

> would band, I was thinking there was at least some hope, and now

it

> feels like there is none. CT confirmed 's mild plagio, said

his

> head is pushed forward, and noted facial asymmetry. Then they did

> nothing to help. ly, after following this board, I am

skeptical

> that they cannot make an effective band, even if the improvement

is very

> small. The people who decided they couldn't band went by his

pictures

> and measurements, which were slightly lower than the Starband

> scanner's. (According to the scanner 's asymmetry is around

6mm,

> and they measured 5mm.) It seems they would at least need the

imaging

> or to look at to make this final decision. We would be happy

to

> bring back in.

>

> Honestly, to me this seems like poor business practice to say they

would

> band and then not. Further, if they were going to refuse to band,

I did

> not need to hear about 's asymmetries and they could have kept

the

> report. After all this, I feel that it is the moral thing for CT

to

> make an extra effort to help us with a band.

>

> Does anyone have any advice on following up with CT? Who would you

> contact? Is there any branch of CT that is more open to banding a

> mild, older baby? What I would like is for one of their more

technical

> clinicians to meet with us, reexamine , and honestly work with

us to

> try and fit him. If they still cannot, then I understand.

>

>

> Thanks in advance,

> Kathy, mom to , 16 months, 4 months in Starband

>

[Guest guest]

Hi,

My husband talked with them, but he said that age did not seem to be

their main concern. The fact it was mild was part of it, but my

husband said the deciding factor was his head shape. It seems though

they should at least be able to have us pay for the scan, so they can

seriously reconsider whether it is possible, especially since they are

going back on what they originally said. I'm just so frustrated!

Thanks again,

Kathy

bandedbabiesmom wrote:

I don't think CT is intentionally not treating your son. If you

look at the research, it shows that optimum results are before 12

months. I think that CT doesn't want you to waste money and get your

hopes up for results in treatment, and have it be a waste of your time.

If you feel like it needs to be treated, you should see your ortho or

ped and ask them what the next steps are since the Star band treatment

didn't work and your son is 16 mo. Good Luck.

> > >

> > > Hi,

> > >

> > > As everyone has probably read, we tried to reband with

CT in

> > southern CA

> > > and they said they couldn't make a band. I'm

extremely upset,

> > > especially since at first they said they would. After

they said they

> > > would band, I was thinking there was at least some hope,

and now it

> > > feels like there is none. CT confirmed 's mild

plagio, said his

> > > head is pushed forward, and noted facial asymmetry. Then

they did

> > > nothing to help. ly, after following this board, I

am skeptical

> > > that they cannot make an effective band, even if the

improvement is

> > very

> > > small. The people who decided they couldn't band went by

his pictures

> > > and measurements, which were slightly lower than the

Starband

> > > scanner's. (According to the scanner 's asymmetry is

around 6mm,

> > > and they measured 5mm.) It seems they would at least

need the imaging

> > > or to look at to make this final decision. We would

be happy to

> > > bring back in.

> > >

> > > Honestly, to me this seems like poor business practice

to say they

> > would

> > > band and then not. Further, if they were going to refuse

to band, I did

> > > not need to hear about 's asymmetries and they could

have kept the

> > > report. After all this, I feel that it is the moral

thing for CT to

> > > make an extra effort to help us with a band.

> > >

> > > Does anyone have any advice on following up with CT? Who

would you

> > > contact? Is there any branch of CT that is more open to

banding a

> > > mild, older baby? What I would like is for one of their

more technical

> > > clinicians to meet with us, reexamine , and honestly

work with

> > us to

> > > try and fit him. If they still cannot, then I understand.

> > >

> > >

> > > Thanks in advance,

> > > Kathy, mom to , 16 months, 4 months in Starband

> > >

> >

> >

>