Thanx

[Guest guest]

,

Thank you for replying to my question. It is nice to know that not all

centers do what ours does. I would not want to do without the center, but in

our

state, we only have one big medical center and childrens hospital and they do

not specialize in CF. Because they are the only large facility in the state,

they tend to sit in their ivory tower and expect everyone to bow to their

wisdom. They have great people, but the doctors don't seem to appreciate a

parent

who questions or gains information on my own. If I wish to go elsewhere

(which I have considered) I would have to travel 5+ hours one way. Oh well,

enough

complaining.

I have two boys age 15 and 16 both with CF. They were diagnosed 3 1/2 years

ago after my nephew was diagnosed at age 8 months. We tested and they both

had it. They did have symptoms when younger but was not caught. My oldest has

some lung damage and has more problems with this condition but doesn't let it

get him down. He does track (school and track club) and he snowboards during

the winter. My youngest is very healthy now. (knock on wood) He plays the

saxaphone, the guitar (acoustic and electric), the piano, the recorder, and the

harmonica. He does cross country, track, and the decathlon. We all play on

the mountains (ski and snowboard), hike, swim in rivers and lakes, and we love

to play on the beach even when cold and raining.

Sorry so late in replying, but Cory has been ill and we just got back from

pic line and starting IV antibiotics. I'm glad Henry loves ice hocky. You are

so right- exercise is great for our children. I hope Henry is healthy and

active.

Wishing happiness and endurance to all

Edina Logan mother of Cory 16 wcf and 15 wcf (and not driving yet

thank goodness. One is enough!!!!!!!)