To ,strange smell and funny tastes

[Guest guest]

Hi and thanks for your answer early in the morning on your side of

the Globe. I just have to say that I have been through just the same,

not believed in, laughed at, and sent to psychologist and psychiatrists

because it is in my head, exactly like your doc said to you, the

difference is that this statement was used by our University Hosp

endoscope dept, a specialist. I have other weird symptoms that I get and

that they think are in my head. But I tell everyone that when I am

fairly well with no pain and eating without too much problems these

symptoms dont occure, which means as I can understand that they are

related to the CP. I have tried to describe the fact that I can easily

knock someone down if I dont get my icecream, ricefruitdesert or sweets

when I crave for it, what a laugh from the doc, so humiliating. I have

had glucose tests done, not showing anything, but they are all done

fasting in the morning. I have diagnoced CP by symptoms, they have not

seen anything on the MRCP, amylase normal and in Sweden they cant mesure

the lipase we dont have the adequate test! They dont do stool tests, too

oldfasion they claim, and so on and so forth. I am on Creon Forte 6-8 a

day, try to eat as you said 5-6 times and on antioxidants and they help,

I went away for couple of days, forgot them and got my pain back when

eating. Hope to hear from you soon, it is now bedtime here, good night.

I have been glutenfree for 3 months, that helped me, recommendation from

England and now I think I have to try lactos reduction. Bye for now and

love from Sonja