Re: new pics posted--would appreciate feedback

[Guest guest]

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What specifically about his head bothers you?

One thing that has that doesn't is a nice rounding at the back of the head. I think that he looks pretty good and not noticably different from other babies - even with wet hair.

He's missing some of the classic features of brachy - including the bulging on the sides and ears that stick out. I think you are totally fine if you want to skip the helmet.

It's hard not to focus on the numbers - I have that problem myself. However, even an 89 percent is not that bad. Even though CT told me that was 86 percent, I don't really believe it. They were quick with their hand measurements and was moving around and fighting them. The most recent hand measurements she cooperated for. She came out as 91.3 percent in the middle of August. She graduated at 92.2 (computer scan) 3 months earlier. My goal in doing the alternative treatments with her is to get the back of her head a little rounder and to get her below 90 percent. This was my original goal when I got her in her STARband. Then, I think I'll be happy and just focus on living life. I honestly believe that this is an attainable goal.

Another comment - it is unlikely that the sutures are fused - this doesn't happen at a year old. If it does, then it's usually considered to be a problem. But, this is what your ortho believe, so it's hard to go against this. It is possible that the soft spots are closing - that may be what he meant. But, change isn't dependent upon the soft spots.

new pics posted--would appreciate feedback

Hi, 's mom again. I just posted a bunch of very new pictures of him in the bath. They're labeled P Oct. 16. (Sorry--I feellike I'm starting to hog the N section). He actually looks better with wet hair, since when it's dry a cowlick at the back makes his head look higher. Anyway, let me know what you think. He had no remaining asymmetry buthis CI is 89%, which is still bugging me like crazy.Thanks!

[Guest guest]

Hi ,

Can the bulges ever go away?  Is the bone misplaced or grown out?  Or

does it just look like a bulge because the head is flatter behind the

bulge?  That is what my husband thinks.  Any advice other than the

helmet and chiro/CST/osteopath for the bulges? 

Another mom from 's gym class and I were looking at our babies

heads.  The mom's daughter is about 's age and wore a helmet for

brachy starting at 6 months.  The daughter still has the bulges on both

sides even though her head rounded out some.  I didn't notice the

ears.  has the bulge on just the right and that ear sticks out a

little.  

Thanks,

Kathy

wrote:

 

-

 

What specifically about his head bothers you?

 

One thing that has that doesn't is a nice rounding

at the back of the head. I think that he looks pretty good and not

noticably different from other babies - even with wet hair.

 

He's missing some of the classic features of brachy - including

the bulging on the sides and ears that stick out. I think you are

totally fine if you want to skip the helmet.

 

It's hard not to focus on the numbers - I have that problem

myself. However, even an 89 percent is not that bad. Even though CT

told me that was 86 percent, I don't really believe it. They

were quick with their hand measurements and was moving around

and fighting them. The most recent hand measurements she cooperated

for. She came out as 91.3 percent in the middle of August. She

graduated at 92.2 (computer scan) 3 months earlier. My goal in doing

the alternative treatments with her is to get the back of her head a

little rounder and to get her below 90 percent. This was my original

goal when I got her in her STARband. Then, I think I'll be happy and

just focus on living life. I honestly believe that this is an

attainable goal.

 

Another comment - it is unlikely that the sutures are fused - this

doesn't happen at a year old. If it does, then it's usually considered

to be a problem. But, this is what your ortho believe, so it's hard to

go against this. It is possible that the soft spots are closing - that

may be what he meant. But, change isn't dependent upon the soft spots.

       

 

new pics posted--would appreciate feedback

 

Hi, 's mom again. I just posted a bunch of very new pictures

of

him in the bath. They're labeled P Oct. 16. (Sorry--I feel

like I'm starting to hog the N section). He actually looks better with

wet hair, since when it's dry a cowlick at the back makes his head look

higher.

Anyway, let me know what you think. He had no remaining asymmetry but

his CI is 89%, which is still bugging me like crazy.

Thanks!

[Guest guest]

Kathy,

I really have no idea about the bulges. I don't think that they can decrease, but can only look less noticeable if the head around it grows and fills in the spaces.

I'm honestly not sure about whether shifting of the sutures would influence that. It's all so hard to understand.

I'd like to hear from moms of babies with brachy that were banded very young. I would think that they would have the best chance because of the large amount of growth.

new pics posted--would appreciate feedback

Hi, 's mom again. I just posted a bunch of very new pictures of him in the bath. They're labeled P Oct. 16. (Sorry--I feellike I'm starting to hog the N section). He actually looks better with wet hair, since when it's dry a cowlick at the back makes his head look higher. Anyway, let me know what you think. He had no remaining asymmetry buthis CI is 89%, which is still bugging me like crazy.Thanks!

[Guest guest]

,

Thanks for your response. Here are my issues (in no particular order):

1. The C.I. I am totally a numbers person and it being out of the normal range

bugs me.

2. The corners at the top in back. From some angles they make me think of

devil's horns.

3. The width as seen from the front. I really don't know how bad this is. I

included a front view pic that isn't very good. What do you (or others??)

think?

4. The cliff-like appearance of the back. Actually I think I didn't include a

back view. This looks much worse wet, actually.

Now it's really hard to separate these physical things from the fact that I am

very mad at myself for not catching the tort and preventing the plagio from the

start. I feel guilty and want to totally correct it.

I am flip-flopping constantly on whether to demand another helmet from our

orthotist or take to Dallas for a Doc band or just push the whole thing

out of my mind somehow.

I really appreciate your feedback. Thank you so much. Now I just need to

figure this out!

>

>

>

> -

>

>

>

> What specifically about his head bothers you?

>

>

>

> One thing that has that doesn't is a nice rounding at the back

of the head. I think that he looks pretty good and not noticably different from

other babies - even with wet hair.

>

>

>

> He's missing some of the classic features of brachy - including the bulging on

the sides and ears that stick out. I think you are totally fine if you want to

skip the helmet.

>

>

>

> It's hard not to focus on the numbers - I have that problem myself. However,

even an 89 percent is not that bad. Even though CT told me that was 86

percent, I don't really believe it. They were quick with their hand measurements

and was moving around and fighting them. The most recent hand

measurements she cooperated for. She came out as 91.3 percent in the middle of

August. She graduated at 92.2 (computer scan) 3 months earlier. My goal in doing

the alternative treatments with her is to get the back of her head a little

rounder and to get her below 90 percent. This was my original goal when I got

her in her STARband. Then, I think I'll be happy and just focus on living life.

I honestly believe that this is an attainable goal.

>

>

>

> Another comment - it is unlikely that the sutures are fused - this doesn't

happen at a year old. If it does, then it's usually considered to be a problem.

But, this is what your ortho believe, so it's hard to go against this. It is

possible that the soft spots are closing - that may be what he meant. But,

change isn't dependent upon the soft spots.

>

>

>

>

>

> Ticker id: IvP3   Ticker id: yZZP     Ticker id: lFno

>

>

>

> new pics posted--would appreciate feedback

>

>  

>

>

>

>

> Hi, 's mom again. I just posted a bunch of very new pictures of

> him in the bath. They're labeled P Oct. 16. (Sorry--I feel

> like I'm starting to hog the N section). He actually looks better with

> wet hair, since when it's dry a cowlick at the back makes his head look

> higher.

>

> Anyway, let me know what you think. He had no remaining asymmetry but

> his CI is 89%, which is still bugging me like crazy.

>

> Thanks!

>

>