newbee

[Guest guest]

hello my name is dan iam 36 and recently was diagnosed with rp.

this is so wierd.can anybody tell me what to expect in the next

couple of years.

I have two children 14 and 9 and am so worried what would

happen.thier mother left us 7 mos. ago and the stresses of being a

single parent and the ones associated with a diagnosis of rp seem

overwhelming right now and i know this will abate but for now a quest

for information on this disease seems to be the only thing that can

distract me from self pity(I find self pity a disgusting thing)

after being prescribed antibiotics for my swollen ears from my gp I

knew he was misdiagnosing me for perichondritis i went to the

internet found the information i needed and asked dr. trentham at

beth isreal in boston if he would be interested in seeing me he

immediatly has taken me into his care and claimed i was the first of

his patients to self diagnos he is a remarkable man with such high

energy i feel grateful to him already, however our first meeting was

so abrupt that i didn't have time to ask alot of questions and now i

won't see him again til the 15th i guess thats why i'm here,am i even

making sense?any information on what to expect would be appreciated,I

guess i should have just said that in the beginning.thanx