Re: Cleaningless in CF centers...ANNA

[Guest guest]

, you are so right, and the reward of vigilance is

better health, physical and mental for all members of the

family, but especially of the person with cystic fibrosis!

I applaud your stance!

Love to you, and to all in your family, and to your new

doctor!

n Rojas

Cleaningless in CF centers...

> Dear Friends,

>

> I am talking from the bottom of my heart with the love that only a

> mom knows. Just because a CF center is acredited by the CFF doesn't

> mean they are following CFF guidelines.

> Some of you remember me telling our story when a was diagnosed

> here in Memphis, TN. and we went to the so called CFF at LeBonheur

> Children's Hospital. Biggest fiasco of my life, what a dirty, nasty

> place. Incompetentcy is the rule in this darn place, as you can tell

> I am still very bitter with these people. I just can not imagine how

> they can go to bed everynight.

> Well, with that said, always follow your instints and if something

> does not seem right open your mouth and let them know. If necessary

> walk away, you will be grateful that you did. I was way to scare and

> very ignorant about what could and would harm my CF child. I did not

> know what pseudomonas were much les the B word.

> I wish the CFF would be much stricter before endorsing a place that

> is probably killing children. I know for a fact that children at the

> CFF here in Memphis are not doing as well as the people that Dr.

> Hanissian sees.

>

> Ranting now, Love to all of you and thank you for letting me vent,

> some day I will grow up and move on and not think about them.

>

> mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

>

>

>

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> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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