Re: the CF Gasp, choke, and 'gargle'

[Guest guest]

I agree with you n about the PPS (pooping in the pants syndrome) My

has such bad gas that she ha ruined more underwear then I have bought my whole

life. It is bad when she is on her period. And it is very embarrassing. But

with humor we get through it.

Have s great Saturday.

judy mom to with CF 20 years)

the " CF Gasp, choke, and 'gargle' "

This is a more severe problem than " the CF Voice, " which can be ignored.

What this means is that the moment the phone rings the " gasp, choke and

'gargle,' "

often accompanied by violent and uncontrollable coughing, begins.

This leads to the next problem with those who have CF: the urgent need to use

the

toilet, which is most awkward when one is on the phone.

At this point, one does not belabor the gender issue; one requests a call back

and

makes a " mad dash! "

The life of those with CF is indeed totally unpredictable; the worst is the

" pooping in

the pants syndrome, " which is known to many adults, parents and relatives.

Love to all at cfparents and cfsupport (conncoll),

n Rojas