P.S. to Peg

[Guest guest]

Peg: I guess I getting curious now.....did you say that the pain

started for Brandan in 2000 and then progressively got so bad that

he needed a total TP/ICT after only a couple of years? I was always

under the impression that to get to that point, it would be a

loooonnnggg time before panc burnout. I would be very interested in

hearing Brandan's story if you don't mind.....

thanks again

> ,

> Please correct me if I am wrong but did you say one time you

were from RI?

> Anyways I wanted to say don't ever feel as if your rambling on

about yourself

> for I remember feeling the same way you did when I first met

Karyn, starved

> for whatever information I could find. With knowledge there is

power and if

> one can teach others by what they learn then by all means

ramble...: ) If you

> know what I mean. By listening to you it sounds exactly as

Brandan described

> to me when our journey with this disease started in 2000, the

color of your

> skin, Brandans turned a pasty white, black rings under his eyes

and yes the same

> pain you describe from the right to the back sometimes radiating

to the left.

> Brandan was never sick, so it did puzzle and still puzzles many.

I say that

> because Brandan did see Dr. Banks and I would love to

discuss with you

> our visit sometime. We had never been to the Lahey Clinic but we

have been to

> Rhode Island Hospital, Rhode Island Childrens Hospital, Childrens

Hospital,

> Brigham and Womens and Mass General. Since Brandans surgery his

skin has a

> beautiful glow again, he is once again living a quality of life,

no longer meerly

> existing. He does live with residual pain 40% of patients that

have the

> TP/ICT do, but he does not endure horrific attacks, there has been

no

> hospitalization since his surgery, and he is NOT a diabetic. I

would love to talk with you

> by phone sometime if you would like. Please feel free to email me

personally

> for sometimes I do not get a chance to read the posts everyday. I

am still

> looking for information, for PAINcreatitis has become a very big

part of my

> life. I learn from all who post everyday I read these posts and I

have learned

> so much from others here and also from the parents of children

whom I also

> speak with by phone with this same disease. I apologize for not

posting more

> often but life is as for all hectic. Welcome to all newcomers and

a HI to all who

> have been by our sides for many years on this journey. As always

keeping you

> and yours in our thoughts and prayers always...Keep smiling (cuz

sometimes

> its all one can do!) TTFN.. : )

>

> Peg Bates

> Brwnbare9@a...

> MA State Chapter Rep.

> Pancreatitis Association Intl.

>

> " It truly is amazing how one person can make a difference. "

>

>

>