Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Hi All, I have some "general questions that I am asking both the foundation group and the support group because I want as many answers as possible. I would appreciate anyone with any knowledge of these questions to please send in their input. Question no. 1: Does anyone here get knots behind their ears and on their necks and has your doctor said it is a flare? Question no 2: Does anyone here get knots on their legs and if so, what has your doctor said it could be/is?? Question no. 3: Are your ears stiff? I mean, if you are not flaring and someone or something bends/hits your ear somewhat, is it very painful? If so, is this something that has to be lived with because of previous flares making your ears like this? I hope that question makes sense. LOL I've heard of the "floppy" ear with RP but not this "stiffness" that comes with our disease and I was testing everyone in my families ears tonight, and everyone's ears are much more pliable and flexible than mine. Mine are some what stiff and unbendable. Anyone notice this? Anyone done an ear test on their family members? LOL OK, I hope you don't think me totally nuts now, but I would appreciate any input to all or any of the above questions. Thank you in advance, W If God brings you to it-He will bring you through it. Quote Link to comment Share on other sites More sharing options...
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