Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Hi Carol and all, I thank you for your reply. The ethusiasm is still with me, I just want this entire problem to vanish and am dealing with the reality that we may be like you and never see a " cure " . I wished and hoped for a " cure " . But like you out of medical necesity can not eat in any other way or we get sick and suffer. So SCD is not a choice for us....Elaien's suggestion to stop the diet is not ours. Seeing our little girl smile for the first time was a joy! Seeing her talk and no longer suffer from seizures and deleriums was a miracle. I felt like shouting from the roof tops back then. You are right I did have much enthusiasm! Anybody who wittnessed our little Elaine miracle did. Back then I did expected a cure though. We are only seven months out. Maybe so...but it looks doubtful. This is no doubt a life long adherance for me and Kiki. But a cure....we may have to grieve this. I will never forget the veil of her sickness being taken from her. It baffles me though that she should still suffer from malabsorbption, even if it is to a much lesser degree. Even Elaine said that the SCDiet reflects the origional diet of mankind. She says this in her note to the beginners on her web page. This is what captured our attention since we did come from paleo convictions, that we had been practicing for a year prior to SCD. But without the success of SCDiet. Which only happened because of the guidlines given in the BTVC book. My family can't seem to tolerate the beans, so we feel at home on other list serves also. Since paleo does not allow the beans. Elaine herself visited Healing Crow. Some day....we may be able to eat them....maybe never, I do not know. I do know that I thank Elaine from the bottom of my soul and with all my heart for getting us this far. Seven months ago...we all suffered miserably. Our ASD daughter the most....maybe I am jumping to conclusions by panicking. It is the job of a mother to worry and want the best for her kids. I want this all to VANISH...and it has not. Much, much, better but not gone. So I want someone to wave their magic wand. So we go to expensive doctors. And discover that we can not afford them. SCD is not magic....neither are the doctors who do not understand intestinal diseasea or ASD. FAITH is not easy....but it is the only thing that we have. Faith nocked....fear answered and nobody was there. Grief and reality are very much interconnected. Acceptance and Peace takes time but only with FAITH. I need to make a grattitude list....and then I will feel better. Without Ealine I would have little grattitude to make a list out of. I love you Eliane! As for the doctors....well money has dictated that we will not be receiving much of their advice or help. What else can we do but stay on the road that has worked the best so far? Antoinette and and their three kids (all Scd 2/06) Quote Link to comment Share on other sites More sharing options...
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