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CF Kids getting together

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Hello everyone, being new to CF, or more precisely waiting to see if

CF is what we are dealing with, - why shouldn't CF kids get together?

Is it a problem with viruses?

Carolyn

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We were told that it is because of bacteria exchange. For instance, right now

Piper has Staph and Pseudomonas, so if she is in close contact with another CF

person that doesn't have Staph or PA, she could pass it on to them, or vice

versa.

Katy

Mom to Austin 4 no CF & Piper 16 months w/CF

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Hi.I was told that there used to be camps for cf kids until they

learned when the kids were together they were spreading stuff like

B. cepacia.Another instance of living and learning, unfortunately at

the expense of many beautiful vulnerable children.I am scared to

even have my son in the same ROOM as another cf person for fear of

such bacterias spreading.I DO think the kids need support and

friendship from one another and the pen pal idea someone brought up

was a good way to do that.

Patty, mom to Tyler 8 wcf & 2wocf

> Hello everyone, being new to CF, or more precisely waiting to see

if

> CF is what we are dealing with, - why shouldn't CF kids get

together?

> Is it a problem with viruses?

>

> Carolyn

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