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HERE IN IOWA, I CONTACTED MAW AND THEY SENT ME FORMS TO FILL OUT AND I SENT

THEM BACK AND THEN THEY SENT THE DOCTORS FORMS TO VERIFY PATIENT

INFORMATION. AFTER ALL THE FORMS WERE SENT BACK, THEY CONTACTED US AND CAM

OUT TO THE HOUSE TO TALK TO STEPHANIE ABOUT HER WISH AND IF SHE HAD SEVERAL

THINGS SHE MIGHT LIKE TO DO AND WHAT WAS THE MOST IMPORTANT.

WE ARE CURRENTLY WAITING FOR OUR WISH. I TALKED TO OUR REPRESENTATIVE TWO

WEEKS AGO AND HE WANTED TO KNOW HOW MUCH NOTICE WE NEEDED AND TO VERIFY IF

WE WERE WANTING TO FLY OR DRIVE. SINCE MY HUSBAND ISN'T GOING, WE ARE GOING

TO FLY. HE SAID HE WAS GOING TO TURN IN TO THE BOARD FOR US TO GO AS SOON

AS POSSIBLE.

WE ARE SO EXCITED. THAT IS ALL I CAN TELL YOU.

TINA W., MOTHER OF STEPHANIE, 17 YO WCF

MAW

Hey all,

I was wondering if those of you who have gone through MAW could

tell me what to expect. I am up to step two, where I havesent in

's medical info. What happens next? How long does this process

usually take? The reason I ask is because she changes her wish list

everyday, and if it is going to take over a year or more, then she

needs to be thinking about things that she would want or do at that

age.

Anyone want to share their MAW stories?I would really love to hear

them!!

e

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We were not asked to submit any medical information (other than

diagnosis), but we were told the next step is approval by my son's cf

doc and the MAW physician. We have been waiting 5 weeks for that and

have not received word. How long should this take?

I have not told my son that we have applied for this in case he is

rejected, but we have talked to him in general about making a wish or

things he would really like to do.

Steph (mom of 7-yr-old boy w/cf)

> Hey all,

> I was wondering if those of you who have gone through MAW could

> tell me what to expect. I am up to step two, where I havesent in

> 's medical info. What happens next? How long does this process

> usually take? The reason I ask is because she changes her wish list

> everyday, and if it is going to take over a year or more, then she

> needs to be thinking about things that she would want or do at that

> age.

> Anyone want to share their MAW stories?I would really love to hear

> them!!

>

> e

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