new and need advice

[Guest guest]

Hi Jules,

A lot of docs have not heard of a lot of things! Headaches and

migraines are very definitely hypo symptoms. ( Dr Thierry Hertoge stated

this in GMC proceedings a while back).

I have horrible experience of this. It may be fillers in the thyroxine such

as lactose ( I don't drink milk), but all I san say is that when I stopped

thyroxine and started Armour and T3 ( I was in a pretty poor state) I have

only had 2 migraines in 8 years- both when I was under extreme stress

instead of twice a week. I have the utmost sympathy for any migraine

sufferer- folk who think it is just a bad headache don't know anything.

Stenning

Subject: New and need advice

Hi everyone

I'm new to this group but have got concerns over my medication at the

moment so wondered if anyone could give me any advice.

I have an underactive thyroid and was diagnosed about 18 months ago

and thought it was pretty straight forward. I alternated between 50

& 75 mcg on a daily basis. I then went up to 75mcg every day about 5

weeks ago. At this time, I started experiencing mild headaches which

I put down to me just being tired.

A week ago, my doctor put me up to 100mcg each day and my headaches

are virtually unbearable.

I have them constantly 24 hours a day and no matter what I take, they

don't shift.

My doctor says he has never heard of thyroxine affecting headaches or

migraines so seems baffled by it but I can only think that it is the

thyroxine that is causing the headaches.

Has anyone else had or heard of anyone with the same problem?

Sorry to seem such a novice at all this but I really don't know who

to ask for help.

Thanks.

Jules

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Jules,

You wrote:

>

> ...My doctor says he has never heard of thyroxine affecting headaches or

> migraines so seems baffled by it but I can only think that it is the

> thyroxine that is causing the headaches.

>

> Has anyone else had or heard of anyone with the same problem?...

Some people do react with persistent headache to fillers in the T4

pills. Since different manufacturers use different colorings with

different doses, you might try taking two 50 mcg tablets per day instead

of the one 100 mcg, or else switch manufacturers. If they make an

allowed generic for Synthroid, that means the dose equivalence has been

verified.

You can also get headaches from either too much or too little T4,

although these are usually accompanied by other hyperT or hypoT

symptoms. Are you sure you are euthyroid on 100 mcg?

Finally, conversion (T4 to T3) and RT3 issues can go with headaches, but

these also have indicators, typically in the blood tests. Have you

tested FT3 or RT3? Have you tested thyroid antibodies?

Chuck

[Guest guest]

Hi Jules, head-pain can be difficult to pin point, but can be because of blood pressure and this is control ed by adrenal hormones so- perhaps you need to check the adrenals . details are in our files , so read all you can. hope this helps angel.

[Guest guest]

Hi Chuck,

T4 pills in the UK do not contain artificial colours. I know that

these are poison to some folk and can cause hyperactivity in children and

other symptoms in adults. I agree with the rest of your points.

Stenning

Subject: Re: New and need advice

Jules,

Some people do react with persistent headache to fillers in the T4

pills. Since different manufacturers use different colorings with

different doses, you might try taking two 50 mcg tablets per day instead

of the one 100 mcg, or else switch manufacturers. If they make an

allowed generic for Synthroid, that means the dose equivalence has been

verified.

Chuck

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Hi ,

You wrote:

> T4 pills in the UK do not contain artificial colours. I know that

> these are poison to some folk and can cause hyperactivity in children and

> other symptoms in adults....

Eltroxin is the T4 brand that Glaxo markets in the UK. Here is what the

manufacturer says is in the various size pills:

50 µg: Each white tablet contains: levothyroxine sodium USP 50 µg.

Nonmedicinal ingredients: acacia powder, corstarch, lactose and magnesium

stearate. Gluten- and tartrazine-free. Bottles of 100 and 500.

100 µg: Each yellow tablet contains: levothyroxine sodium 100 µg. Nonmedicinal

ingredients: acacia powder, Colorcon yellow, cornstarch, lactose and magnesium

stearate. Gluten- and tartrazine-free. Bottles of 500.

150 µg: Each blue tablet contains: levothyroxine sodium 150 µg. Nonmedicinal

ingredients: acacia powder, Colorcon blue, cornstarch, lactose and magnesium

stearate. Gluten- and tartrazine-free. Bottles of 500.

200 µg: Each pink tablet contains: levothyroxine sodium 200 µg. Nonmedicinal

ingredients: acacia powder, cornstarch, erythrosine, lactose and magnesium

stearate. Gluten- and tartrazine-free. Bottles of 500.

300 µg: Each green tablet contains: levothyroxine sodium 300 µg. Nonmedicinal

ingredients: acacia powder, Colorcon green, cornstarch, lactose and magnesium

stearate. Gluten- and tartrazine-free. Bottles of 100 and 500.

Evidently none of them contain guten or tartrazine, but they all contain other

ingredients, including coloring. Back in June there were complaints about the

colors, binders, and fillers in a new formulation, which caused a lot of side

effects. I recall Shomon had an article or two about the upset.

Chuck

[Guest guest]

Hi Chuck

I have some Eltroxin but it is now made by Goldshield not Glaxo.

The tablets I have are 100mcg each, white and contain no colours, I

dont take them because they are not as potent as the generic.

Chris

> > T4 pills in the UK do not contain artificial colours. I

know that

> > these are poison to some folk and can cause hyperactivity in

children and

> > other symptoms in adults....

>

> Eltroxin is the T4 brand that Glaxo markets in the UK. Here is

what the manufacturer says is in the various size pills:

>

> 50 µg: Each white tablet contains: levothyroxine sodium USP 50

µg. Nonmedicinal ingredients: acacia powder, corstarch, lactose and

magnesium stearate. Gluten- and tartrazine-free. Bottles of 100 and

500.

>

> 100 µg: Each yellow tablet contains: levothyroxine sodium 100

µg. Nonmedicinal ingredients: acacia powder, Colorcon yellow,

cornstarch, lactose and magnesium stearate. Gluten- and tartrazine-

free. Bottles of 500.

>

> 150 µg: Each blue tablet contains: levothyroxine sodium 150 µg.

Nonmedicinal ingredients: acacia powder, Colorcon blue, cornstarch,

lactose and magnesium stearate. Gluten- and tartrazine-free. Bottles

of 500.

>

> 200 µg: Each pink tablet contains: levothyroxine sodium 200 µg.

Nonmedicinal ingredients: acacia powder, cornstarch, erythrosine,

lactose and magnesium stearate. Gluten- and tartrazine-free. Bottles

of 500.

>

> 300 µg: Each green tablet contains: levothyroxine sodium 300 µg.

Nonmedicinal ingredients: acacia powder, Colorcon green, cornstarch,

lactose and magnesium stearate. Gluten- and tartrazine-free. Bottles

of 100 and 500.

>

> Evidently none of them contain guten or tartrazine, but they all

contain other ingredients, including coloring. Back in June there

were complaints about the colors, binders, and fillers in a new

formulation, which caused a lot of side effects. I recall

Shomon had an article or two about the upset.

>

> Chuck

>

[Guest guest]

Hi chuck-

Thanks for the details, but generally NHS patients are not prescribed

Eltroxin unless less they react badly to the other cheaper 'me too' meds

made by APS etc which are white and uncoated. Any other ingredients may

cause allergies in sensitive folk and being hypo seems to predispose to

allergies and sensitivities which in my case reduced once I got on the right

meds.

Stenning

Evidently none of them contain guten or tartrazine, but they all contain

other ingredients, including coloring. Back in June there were complaints

about the colors, binders, and fillers in a new formulation, which caused a

lot of side effects. I recall Shomon had an article or two about the

upset.

Chuck

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

You wrote:

>

> I have some Eltroxin but it is now made by Goldshield not Glaxo....

According to the Goldshield web site, their version of Eltroxin contains exactly

the same extra ingredients as GlaxoKlines' OLD fomulation, before they

started all the problems in New Zealand last summer.

Chuck

[Guest guest]

,

You wrote:

>

> Thanks for the details, but generally NHS patients are not prescribed

> Eltroxin unless less they react badly to the other cheaper 'me too' meds

> made by APS etc which are white and uncoated.

Here are the listed ingredients for the APS (Approved Prescription Services)

generic for levothyroxine: Thyroxine Sodium BP, lactose, dextrin, maize starch

and magnesium stearate. Same as for the Goldshield and Glaxo Eltroxins.

Chuck

[Guest guest]

Hi Chuck

I think here in the UK we have a banning on certain E numbers

(colours).

The packet insert says the Eltroxin 100 mcg contains:

Levothyroxine Sodium

Sodium Citrate

Lactose

Maize starch

Acacia powder

Magnesium Stearate

Purified water

Chris

> >

> > I have some Eltroxin but it is now made by Goldshield not Glaxo....

>

> According to the Goldshield web site, their version of Eltroxin

contains exactly the same extra ingredients as GlaxoKlines' OLD

fomulation, before they started all the problems in New Zealand last

summer.

>

> Chuck

>

[Guest guest]

All the thyroxine pills I get are white, we dont have any coloured ones here in the UK, all sizes are white so I presume are colour free

Hi Chuck

I have some Eltroxin but it is now made by Goldshield not Glaxo.

[Edit Abbrev Mod]

[Guest guest]

I don't know whether cloves will kill it or not....but taking the fresh cloves

that San Francisco herb company sells by the lb. that Dr. Recomends kills

off lots of stuff...of course get you some wormwood and when the black walnuts

are in season I freeze them for the year and drink 1 cup per day (you have to

build up to that....I couldn't do but a 1/2 cup and had to build up to that too

for awhile .... it will give you diahreehea to take too much however that is a

cleansing and probably good in itself? if you are willing to do it ) Take just a

teaspoon at first and build up to it slowly but surely. Also try 20 drops of

oregano oil in a capsule and if you have an ozone machine ozonate some olive oil

(start with a tablespoon)....if it doesn't get the pinworms at least you will

have cleaned up your body....but I bet it will....

Dr

From: dagwitz@...

Date: Wed, 18 Feb 2009 14:36:21 +0000

Subject: new and need advice

HI, we discovered my daughter has an infestation of pinworms. She is

16 and we don't want to do conventional medicine if possible. Would

this zapper work on severe festations? Can anyone give me some

insight and maybe some info about how much herbs she should take?

Sincerely,

Doris

_________________________________________________________________

Get more out of the Web. Learn 10 hidden secrets of Windows Live.

http://windowslive.com/connect/post/jamiethomson.spaces.live.com-Blog-cns!550F68\

1DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008

[Guest guest]

Hello, Doris-

 

I'm a Protocol Enthusiast for some 13 years now and while I still have a

LOT to learn, I am experienced and have many successes with Bio-electric

research..

 

First the zapper is great and works for a LOT of things. But it doesn't work for

everything.  I personally have had Pinworm problems and don't believe that it

will get them. But do not allow me to dissuade you!  [Others out there with

research opinions, please?]

 

Second, since they multiply and in their stages of development will create kill

problems; e.g. you may kill the adults but probably not the egg and larvae

stages, thus you have a continuing host of developing stages unless you consider

that in your chosen treatment protocol a method that will kill them as they

mature into adults so that you finaly kill off all that were able to reproduce.

 

While I have great confidence in the original zapper [own and use more

than one] I am a proponent of the Function Generator [FG].  The zapper works on

an electrical  principle embodying a protocol that incorporates a broad range

while the FG cxan be set to specific frequencies that are known to kill specific

pathogens.  

Pinworm(s) [Enterobiasis] possess a known set of believed kill frequencies and a

FG can be adjusted to attain these.

   

Off ther bio-electric scale my research has shown that the herb protocol

is very effective.    References for all the above protocol on request.

 

Nutricon, Luke

From: dagwitz <dagwitz@...>

Subject: new and need advice

Dr

Date: Wednesday, February 18, 2009, 7:36 AM

HI, we discovered my daughter has an infestation of pinworms. She is

16 and we don't want to do conventional medicine if possible. Would

this zapper work on severe festations? Can anyone give me some

insight and maybe some info about how much herbs she should take?

Sincerely,

Doris

[Guest guest]

I don't know about the spelling,  Cascara Sagrada, Black Walnut and Hawthorn

Berry are what use to be suggested to eliminate these.

-Janet

 

 

" I don't believe that there is anything else available anyplace in the world at

any price - with or without a prescription - that has been clinically proven to

do all the things that Juice Plus+ has been shown to do. " Dr DuBois M.D.

www.juiceplus.com/+jr28319

From: dagwitz <dagwitz@...>

Subject: new and need advice

Dr

Date: Wednesday, February 18, 2009, 6:36 AM

HI, we discovered my daughter has an infestation of pinworms. She is

16 and we don't want to do conventional medicine if possible. Would

this zapper work on severe festations? Can anyone give me some

insight and maybe some info about how much herbs she should take?

Sincerely,

Doris

[Guest guest]

Hello,

 

I know this may sound a bit old fashioned, but one thing I think would be

important and Dr. even suggests this is to boil all underwear, like in the

old days.  I would also dry your bedding daily on very high heat to kill the

eggs.

Pinworms are one of the hardest parasites to get rid of because their eggs can

live in the air for two days without a host. To prevent auto-reinfection, you

must immediately upon waking take a shower to wash the eggs from your body. You

then need to wash your nightclothes, underclothes, and bedclothing in hot water

to kill the eggs. You will also need to disinfect your bathroom daily. Pinworms

eggs are microscopic and they have a sticky coating.

I know this sounds like a lot of work - but pinworms are like head lice and

removal of the eggs is very improtant.

 

I'm not sure about this tho, but it's possible drinking ozonated water may be of

some benefit for killing them off.  Ozone is known to kill any pathogen or

parasite it comes into contact with.  It's being used extensively in hot tubs

instead of chlorine now for that very purpose.  I would also consider ozone

rectal insufflations and ozone enemas.

From: dagwitz <dagwitz@...>

Subject: new and need advice

Dr

Date: Wednesday, February 18, 2009, 6:36 AM

HI, we discovered my daughter has an infestation of pinworms. She is

16 and we don't want to do conventional medicine if possible. Would

this zapper work on severe festations? Can anyone give me some

insight and maybe some info about how much herbs she should take?

Sincerely,

Doris

[Guest guest]

>

> From: dagwitz <dagwitz@...>

> Subject: new and need advice

> Dr

> Date: Wednesday, February 18, 2009, 7:36 AM

>

>

>

>

>

>

> HI, we discovered my daughter has an infestation of pinworms. She is

> 16 and we don't want to do conventional medicine if possible. Would

> this zapper work on severe festations? Can anyone give me some

> insight and maybe some info about how much herbs she should take?

> Sincerely,

> Doris

>

>

>

>

>

>

>

>

> Dear Luke,

Sorry for butting in but I just wanted to say how I

appreciate your advice to the new comer. Especially important to

give Dr. 's correct protocol to begin with and tweek it with

other methods later. It surprises me how few folks really follow her

methodologies that post on the Dr Hulda Cures. I know everybody

means well so I am not intending to insult anyone. We all start

somewhere and I am a beginner to someone more advanced as well. Peace.

>

>

> Cherylanne

>

>

>

>

>

>

>

[Guest guest]

>

> HI, we discovered my daughter has an infestation of pinworms. She

is

> 16 and we don't want to do conventional medicine if possible. Would

> this zapper work on severe festations? Can anyone give me some

> insight and maybe some info about how much herbs she should take?

> Sincerely,

> Doris

>

Edgar Cayce recommended cabbage for pinworms. Only raw cabbage for

one day.

http://www.bibliotecapleyades.net/esp_cayce05_06.htm

" Every time the kids get pinworms, my wife grates some raw cabbage

and feeds it to them, for breakfast, lunch, and dinner. By bedtime,

or the next morning, the pin-worms are gone. " The cabbage was all

they took that day except for tea, also recommended.

" Cayce,said that one cabbage leaf killed a hundred thousand pinworms. "

[Guest guest]

NLD kids can be funny and have speech in tact except for social

pragmatics. NLD kids often need a lot of school support.

AS kids can have NLD too. BP I, BPII kids can have NLD. And then there is the

cylothemic child that is not as extreme as the full

BP child to confuse things more.

NLD kids needs all the support AS and BP kids get and more. Often

NLD kids have trouble in math, AS may not it may be a strength.

NLD have motor skills issues AS and BP kids may not. NLD kids are

often verbal learners where AS and BP alone may do fine with

visuals etc. NLD kids often have emotional control issues.

So do BP and AS alone kids.

Having NLD is significant to know for school accomodations versus

AS. There is alot of overlap, and special schools usual address

both needs together. This should be easy for you to figure out, if he is a

verbal learner or not. There are group books and sites for NLD. NLD at school by

Pamela Tanguary. NLDline.

Often the BP alone child can be very social and have social

pragmatics intact.

If the child has AS/NLD and not clear manic/depressed

cycles than it is not clearly BP with AS/NLD.

If the child is hypomanic/dysphoric and has AS/NLD

then it could be called AS/NLD with cyclothemia or some

just call it AS with mood disorder NOS or AS with anxiety NOS.

It is so confusing isn't it. I try to figure this out too.

Pam

>

>

> Hi Everyone,

>

> Thank you for letting me join. My son is 12 1/2 years old. As a baby, he would

scream for hours. I thought it was colic, but later learned colic isn't supposed

to last for a year! He spoke before he was one, but then he stopped talking for

a year. He had problems getting along with other kids. I remember when he was

about four, he had a friend over. Whenever a friend came over, he had to put his

" special toys " hidden in my room so no one else would play with them. Well, this

day, the friend found the toys. My son got so upset, he shoved the little girl

into our piano and she got a big bruise. My husband's family has a history of

mood disorders. He is really smart; he learned to play chess when he was four.

Things got so bad with his behavior, that a few weeks ago we had to put my son

in a phosp. It was really tough to do. He got mad and threatened to stab us with

a knife while we slept.

>

> He has about 10 different diagnosis'. My son, Elliot, has auditory processing

problems, short term memory problems, dyslexia, a recent EEG showed seizures in

his right temporal lobe. He is on medication for Bipolar, but this last doctor

at the hospital told me he thought my son has Asperger's. I am really floored by

this. I just don't see how he can be Asperger's. He can be so empathetic

sometimes. If his little sister is scared, he will sit by her bed until she

falls asleep. He wants friends, even though the kids he usually picks are

trouble-makers. He does pretty well holding things together in school.

>

> One neuropsy. told us he thought Elliot had a NVLD, that all his psy. testing

showed this, but then when he met Elliot, who was very polite and funny with the

doctor, he said, " Oops, I was wrong " . Not very helpful.

>

> So, we really don't know. My family thinks he has behavioral problems because

we are lousy parents. It seems everyone I know has advice to give, but no one

wants to deal with him.

>

> Anyway, sorry this is so long. Thank you for letting me join. If anyone has

any advice about Asperger's, I would really appreciate it.

>

>

> Atlanta, GA

> mom to Elliot, 12.5 yrs

> Lithium, Lamictal, Seroquel

>

[Guest guest]

I am sorry I am new at all this and I have no idea what the letters mean so if you could let me know all the abbrev. I might be able to help! I am new with my so who is going to be 6 on may 8th but I have my husband and his brother who should have been checked when they were young but didn't. So i have a lot of ideas and things that have worked for them but, I need to know what the letters mean!!From: susanonderko <susanonderko@...>Subject: ( ) Re: new and need advice Date: Sunday, April 19, 2009, 2:33 PM

NLD kids can be funny and have speech in tact except for social

pragmatics. NLD kids often need a lot of school support.

AS kids can have NLD too. BP I, BPII kids can have NLD. And then there is the cylothemic child that is not as extreme as the full

BP child to confuse things more.

NLD kids needs all the support AS and BP kids get and more. Often

NLD kids have trouble in math, AS may not it may be a strength.

NLD have motor skills issues AS and BP kids may not. NLD kids are

often verbal learners where AS and BP alone may do fine with

visuals etc. NLD kids often have emotional control issues.

So do BP and AS alone kids.

Having NLD is significant to know for school accomodations versus

AS. There is alot of overlap, and special schools usual address

both needs together. This should be easy for you to figure out, if he is a verbal learner or not. There are group books and sites for NLD. NLD at school by Pamela Tanguary. NLDline.

Often the BP alone child can be very social and have social

pragmatics intact.

If the child has AS/NLD and not clear manic/depressed

cycles than it is not clearly BP with AS/NLD.

If the child is hypomanic/dysphoric and has AS/NLD

then it could be called AS/NLD with cyclothemia or some

just call it AS with mood disorder NOS or AS with anxiety NOS.

It is so confusing isn't it. I try to figure this out too.

Pam

>

>

> Hi Everyone,

>

> Thank you for letting me join. My son is 12 1/2 years old. As a baby, he would scream for hours. I thought it was colic, but later learned colic isn't supposed to last for a year! He spoke before he was one, but then he stopped talking for a year. He had problems getting along with other kids. I remember when he was about four, he had a friend over. Whenever a friend came over, he had to put his "special toys" hidden in my room so no one else would play with them. Well, this day, the friend found the toys. My son got so upset, he shoved the little girl into our piano and she got a big bruise. My husband's family has a history of mood disorders. He is really smart; he learned to play chess when he was four. Things got so bad with his behavior, that a few weeks ago we had to put my son in a phosp. It was really tough to do. He got mad and threatened to stab us with a knife while we slept.

>

> He has about 10 different diagnosis'. My son, Elliot, has auditory processing problems, short term memory problems, dyslexia, a recent EEG showed seizures in his right temporal lobe. He is on medication for Bipolar, but this last doctor at the hospital told me he thought my son has Asperger's. I am really floored by this. I just don't see how he can be Asperger's. He can be so empathetic sometimes. If his little sister is scared, he will sit by her bed until she falls asleep. He wants friends, even though the kids he usually picks are trouble-makers. He does pretty well holding things together in school.

>

> One neuropsy. told us he thought Elliot had a NVLD, that all his psy. testing showed this, but then when he met Elliot, who was very polite and funny with the doctor, he said, "Oops, I was wrong". Not very helpful.

>

> So, we really don't know. My family thinks he has behavioral problems because we are lousy parents. It seems everyone I know has advice to give, but no one wants to deal with him.

>

> Anyway, sorry this is so long. Thank you for letting me join. If anyone has any advice about Asperger's, I would really appreciate it.

>

>

> Atlanta, GA

> mom to Elliot, 12.5 yrs

> Lithium, Lamictal, Seroquel

>

[Guest guest]

Hi everyone! I am new to this group. Our son is 8 months and 9 days old and we

were just diagnosed with positional plagiocephaly. Our pediatrician referred him

to a neurosurgeon because he felt my son¡¯s head is not only flat but also has a

slight dent in the flat area. Today the nurse of neurosurgeon called us and

asked my son to have a head CT scan tomorrow (the appointment with the

specialist will be on next Thursday). I have some concerns about the CT scan:

1. Is CT scan a routine check for child who may need a cranial band?

2. Is the CT scan safe for an 8-month old infant?

3. Is it unusual for the neurosurgeon requiring patient to have a CT scan before

he see the patient? (In our case, the pediatrician tried to have the earliest

available time with the neurosurgeon for my son. That could be the reason, but

it¡¯s good to know if anyone had the similar situation)

Any and all advice would be greatly appreciated.

Thank you!

Amy

[Guest guest]

I haven't heard of a CT scan being routine for plagio. We didn't have one. I

did hear that CT scans can possibly cause cancer later in life, especially in

babies because they have a longer time in life to develop it. I read this and

payed attention because I had one years ago for migraines. I am not happy I had

one and when looking back would have requested a MRI. I know that is much safer.

Can you request to have that instead?

Mom to Sebatstian 8 months, 1 week (Starband 17 weeks)

> new and need advice

> Date: Thu, 17 Sep 2009 20:36:35 -0000

>

>

> Hi everyone! I am new to this group. Our son is 8 months and 9 days

> old and we were just diagnosed with positional plagiocephaly. Our

> pediatrician referred him to a neurosurgeon because he felt my

> son¡¯s head is not only flat but also has a slight dent in the flat

> area. Today the nurse of neurosurgeon called us and asked my son to

> have a head CT scan tomorrow (the appointment with the specialist

> will be on next Thursday). I have some concerns about the CT scan:

> 1. Is CT scan a routine check for child who may need a cranial band?

> 2. Is the CT scan safe for an 8-month old infant?

> 3. Is it unusual for the neurosurgeon requiring patient to have a

> CT scan before he see the patient? (In our case, the pediatrician

> tried to have the earliest available time with the neurosurgeon for

> my son. That could be the reason, but it¡¯s good to know if anyone

> had the similar situation)

>

> Any and all advice would be greatly appreciated.

> Thank you!

> Amy

>

[Guest guest]

Welcome-

My son had a CT scan to rule out cranio as well, he was 3 months old and it is

more conclusive than an x-ray. He did not need to be sedated because they were

able to get the scan in the first try, took about 5 seconds (babies must be

sedated for an MRI because it takes longer and they have to remain perfectly

still, so I was glad we had the CT). We also had the scan done prior to our

appointment with the neurosurgeon. We had to wait 2 months for our appointment

and he ordered the scan in the meantime, I assume to just expedite the whole

thing. This way he knew the results and that we weren't dealing with cranio by

the time we got to the appointment.

Jake-3 (DOCBand Grad 9/08)

>

> Welcome to the group! To answer your questions:

> 1. It is not unusual to have a CT scan done. It is usually done to rule

> out craniosyntosis (premature fusing of the skull bones). Not all doctors

> will order at CT scan as they feel comfortable feeling the head.

> 2. My son had a CT scan done when he was 5 months old and from what I could

> tell it was perfectly safe. They didn't have to sedate him, but would have

> if he didn't cooperate.

> 3. Our specialist (plastic surgeon) was the one that ordered the CT scan

> and we had it done after the appointment. Perhaps the neurosurgeon wants

> the CT scan done before the appointment so he can review the results ahead

> of time.

>

> Hope this helps!

>

> Molly

> Novato, California

> Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

> Graduate!

> , 6.5

> , 9.5

>

> new and need advice

>

> Hi everyone! I am new to this group. Our son is 8 months and 9 days old and

> we were just diagnosed with positional plagiocephaly. Our pediatrician

> referred him to a neurosurgeon because he felt my son¡¯s head is not only

> flat but also has a slight dent in the flat area. Today the nurse of

> neurosurgeon called us and asked my son to have a head CT scan tomorrow (the

> appointment with the specialist will be on next Thursday). I have some

> concerns about the CT scan:

> 1. Is CT scan a routine check for child who may need a cranial band?

> 2. Is the CT scan safe for an 8-month old infant?

> 3. Is it unusual for the neurosurgeon requiring patient to have a CT

> scan before he see the patient? (In our case, the pediatrician tried to have

> the earliest available time with the neurosurgeon for my son. That could be

> the reason, but it¡¯s good to know if anyone had the similar situation)

>

> Any and all advice would be greatly appreciated.

> Thank you!

> Amy

>

>

>

>

> ------------------------------------

>

> For more plagio info