Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 LOL... I called the docs this morning and was told to go to the ER b/c the docs aren't seeing patients until after the holiday....excuse me ....isn't this a pulmo office where people can drop dead at the drop of a hat if not treated quickly.I mean YAH, Im the only cystic but he has COPDers who are on the vent all the tome. What happens to them. Then the nurse calls back and says I need to hurry up and go to the ER b/c it really is an inconvience for the doc to be called after dinner for orders. Good God all Mighty, my treatment never changes.Why can't they direct admit me... I just can't believe they said it is an inconvience to have the doc notified of me after dinner. I mean lordie, Ive been puking since Thursday,Diarrhea since Wed, PRojectile vomiting mucus across the room for 3 days ( I actually hit the other side of the room last night...what a true talent I have..LOL ) Then to top it off they call in a med that isn't anywhere to be found ! ! ! ! I'd say Im the one who's been screwed over not them. Then I call Phycians Mutual to see if my claim got there.I was informed we've been dropped b/c I was in the hospital and couldn't make the payment and Brad didn't believe me when I said it needed to get there ASAP. He waits a week to send it off.So now we're out almost $2,000 we were gonna use for my Mayo Trip. I cried and cried. I feel like shit and then get kicked in the mouth. I called up anyone who would listen....and then cried to them. The true is it just hit me... I am completely reliant on other people.I mean Brads somewhat independant but when he's sick we need help. I'm no better than a 2 year old. I needed someone to get my meds, pay the bills, fix me food when Im too sick to go downstairs (or I will just live in the bed) For several days I brought up a box of oranges and a 2 Liter of soda and thats all I ate and drank (it all came up anyway). It is truely depressing to know that my 21 yo sister is 100% more adult than I am. There is no way I could ever surviive alone .That is a really scary thing to realize Then last night as Im taking a shower and was using my shower care I realized ,good lord, what has happened to me. I remember speaking to friends who were as sick as I am and they passed away. That thought is truely sickening. I can remember talking to Rita and she was yelling at me to turn my 02 up b/c I was SAT'ing crappy.We talked for hours at night b/c what else is there to do in the hospital( although I found that the Krispy Cream Guy comes at night...LOL). She passed away a month later.I mean all it takes is one bad infection and WHAM your screwed. Sorry this letter is this depressing.I am in an majorly irritable crummy mood and my lungs are killing me pain wise ( I guess literallly too). Anyways...I will be going to the ER b/c my docs are screw heads and are busy with holiday shopping....Please pray I don't get stuck in an ER bed for days...they have waiting lists here b/c of the flu.Thats another thing.I have to sit in the dang ER surrounded by sick flu patients and people who have God knows what. I went as far as putting all the Christmas cards up in the house to improve my mood.I mean if I can't do my usual decorations I gotta do something(I go all out for the holiday). I also Lysol'ed the heck out of the house.....Brad and I have been passing the flu back and forth now for awhile. My poor dog is depressed and confused.Mommy goes in and Daddy come out and vice versa. Anyways...Off I go to see the wonderful expressions of the nurses and ER docs when they listen to my chest.Actually its quite amusing...LOL Anyways..I'll get word to Linnie and she's update everyone and send word out to the other lists. Gosh, I will be so glad when I get to Florida and can get listed.Maybe this time next year I'll be too busy running and playing to be online (Naw....Im too much of a computer geek.I'll just run and type at the same time or something....I am ADD if you hadn't noticed). Anyways... MERRY MERRY CHRISTMAS and a HAPPY NEW YEAR. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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