Re tiredness,

[Guest guest]

Hello, I have shared some of the mails concerning the fatigue and

tiredness and sometimes hit by an total weakness. I can hardly stand on

my feet, it can hit me after having done some minor effort I can have

felt strong in the morning starting dealing with enthousiasme and then I

just have to find a chair, a bed not to fall from weakness. In those

situations I often have pain in my legs, even when lying down as if it

hurted inside my bones, especially feet and legs. I also recognize the

feeling of acheing and weakness like before a cold, often freezing quite

a bit as well. Then I get these red little spots inside my mouth right

below my lips inside my mouth, sore, as if the veins are swollen and

small red bursts, also a tendency bleeding when I brush my teeth when

this occurs, a kind of sweet taste (not from eating, just general) in my

mouth ( I have very well kept teeth and most of the time no bleeding, my

sister is a dentist and cant explain it) anyone with the same problems?

I do tend to get red spots on my face and some itching too. Any of this

recognized by someone with CP? You see what I am trying to get at, do I

have some kind of foodallergy as well or is this part of that same whole

" syndrom " ?

Another thing, I know I should not have coffee or chocolate, but I cant

resist it, neither icecream. I crave for it cant stop, try not to buy

it, but…I can get up middle of the night and just have to have it. Like

an addict!. I take the coffee with some hot milk, lowfat chocolate 25%

and not much and lowfat icecream 5% love the chocolateone of course, I

try to stick to the 40-50 g fat diet so I do count all the fat I eat.

Can anyone answer are those tasty goodies bad for us, I am taking the

Creon Forte. Of course I feel reactions, not the worst but still…it´s

just that I long for something tasty, to treat myself with when those

others have that nice glass of wine I cant have. It feels a bit like a

luxury problem, I can eat again after months on liquid diet and then at

once I start to want to have more! Byt the way has anyone heard of a

snack " Jackfruit chips vacuum fried " Chinese or Vietnamese, 0% fat it

says!

I should not complain , we have had a long weekend in Sweden, 30th of

April Valpurgisnigth, bonefires, students celebrating welcoming spring

by singing songs (and drinking TOO much), this day is also our king Carl

the 16th Gustavus birthday followed by Labourday (!) which is still a

holiday in Sweden and I have been in the countryside with not too much

to complain about in the sunshine seeing the birchtrees spreeding light

green leaves on the beautiful white branches.

I hope most of you had some good days too and I am also sending my

warmest thoughts to those of you in hospital, in pain and frustration.

Love from Sonja