Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hi , It's so good to see that you are back online. Just keep taking life one day at a time....what else can we do? Hopefully the new med's will work for you. Take care! Love, squeek --- michelle12371106 wrote: > Hello everyone sorry for not keeping better in > touch, but it is such > a struggle for me to even get up-i am just trying to > live day by > day. I don't know if you read the e-mail from my > dad, Bob, but I > made it back from the Mayo and it was a very > productive trip. They > ran every test you can imagine on me and the > official diagnosis is > RP. Thank goodness someone had the courage to say > it. The fluid I > have they say it cartledge adn the Pred. so I guess > it will go > away. Dr, Luthra said he only had seen one other > case with fluid in > the head so if anyone has it you know the pain i am > talking about. > They are slowing reducing my pred. thank goodness, > now I am taking > 40mg, instead of 45. Any little bit helps. They > have upped my > Neurotin to 800mg 3 X a day instead of 300 3X per > day. They have > taken me off od Methro-and put me on Cellcept. I > hope this one works- > but instead of waiting 3 months it only takes 2-4 > weeks to tell if it > is working. I am having some prblems with my > kidneys-I am not sure > what they are going to do an=bout that. > And for those of you with lesions, try using Vinager > and water-it has > helped heal a few places that have been open wounds > for about 5 > months for me. But be very careful it really dries > out the skin. > The dermatologist said to soak it twice a day for 20 > minutes but I > have found that that it too much. So act at your > own risk. > anyway thatis about all for now. I will try to make > it a point to > keep better in touch, these past few months have > really been hard on > me. I am just 1rst trying to accept these and 2ndly > live with it. > Hope that everyone is having day-noght whatever it > is. And if my dad > reads this happy fathers day- > michelle-----mrlchris@... > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 , I am sending good thoughts your way that the meds will start kicking in soon and things will get back to a normal for you! Sounds like you have a terrific Dad. Give him a big hug for me! Know that we are here for you whenever you need us! Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
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