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Re: /ANDREA

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GOOOOOOOOOOOOOOOO, ! Yes!

Thank you,

Love, n

Hello

>

>

> Hi!

> I'm going to give this another try, I'm not sure it worked the first

time around. Anyways, my daughter, Sydney, is going to be three in March,

and she was diagnosed with CF in May of this year. My husband was actually

deployed during the war when I found out, so I was sort of handling it

myself with help from my family until he came home. Anyways, I have a bunch

of questions concerning CF, but I'll start out small. We had an

appointment yesterday at the CF Clinic, and found out that Sydney tested

positive for psudanomas (non-mucoid). We started her on TOBI today, and I'm

concerned about her taking it at such a young age. Has anyone else out

there had to use this on their toddlers? If so, did you see an improvement?

For the most part my husband and I are trying to be very positive about

everything, but sometimes its hard. I want her to live a normal life, but I

already find myself sheltering her from a lot. We recently moved to

Virginia, and I haven't returned to work yet for fear she'll be exposed to

way too many viruses at a daycare center. It seems like we're starting to

spiral out of control with our emotions, any advice on how to get a grip on

reality without letting it bring you down? It feels like we're the only

family going through this. I'm hoping somebody has some words of

encouragement out there! Thanks in advance for any advice you may have for

us.

>

> Tracey

>

>

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