My good News...Better late than never

March 31, 2004

Hi,

I thought I had posted about my the results my last CT scan showed

up of the Desmoid tumours I have growing in my abdomen but I must

not have posted it to this group. My surgeon said that reading

through the medical reports from my GI and surgeon at Vanderbilt

from my almost Whipple surgery last year, showed that with all the

tumours and the places that they were, I would have only had about 3

years to live...that was a shock to me..I knew the tumours were

there, but didn't realise that my life would have been shortened

that soon by them. Was under the impression maybe 10-15 years or

more but not 3.

When I had my surgery to remove 3 of them from inside the layers of

my skin and under my chest wall, my surgeon saw me before my surgery

and told me that he had some great news for me to take to sleep with

me. Everywhere where tumours were showing from a CT in

November..showed black..which meant nothing was in my abdomen that

shouldn't have been..That made me so happy..I can live a long life

with my husband and watch my daughter grow up.

The surgery was a success, even my open wound closed on the 20th

March. I do have a small tumour growing in my previous surgical

scar, and it is starting to hurt me which means it is growing, but I

will just have to have surgery to remove it. There is a 70% chance

of them recurring, so I keep optomistic that they won't grow back,

but in the back of my mind, I know they will.

They are balls of fibrous tissue that just keep growing, are very

rare 2% of the population get them...and occur from any type of

trauma. Mine have grown from my skin being cut during surgery, and

even from my stomach stretching when I was pregnant..

But I have a new lease on life, and will just go with the flow for

now.

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