Has anybody heard of this?

[Guest guest]

Hello all. I finally got into see my doc who I haven't seen since

May. He is now requesting that I go do another MRCP. I had one

done in December and it showed nothing but pancreas divisum.

The problem with me is that apparently my ducts aren't dilated at

all and the smaller duct, due to my divisum, isn't dilated and is

completely flat. Therefore he says it's impossible to access it by

surgery or ERCP. He's hoping that maybe on this MRCP, since i've

been so ill since December, that the duct is dilated. He said if it

is then they can see it and possibly access it. He said if it's not

showing up then there really is little to do. He says I will be

looking at chronic pain management.

I was just wondering if anyone else has had this problem. I'm just

so sad that they might not be able to do anything. I live in

Manitoba in Canada, so we don't have secretin available or EUS

ultrasound. I asked about being sent to the States and he said only

if that duct was showing up on the MRCP.

I just can't accept that i may be chronically sick. He said he's

not even sure if it is pancreatitis. Which confused me, cause I

have all the symptoms. Elevated lipase (2250 right now), constant

LUQ pain that radiates into chest and back, nausea, vomitting,

diarrhea and exhaustion and sweating. I'm only 27 years old and i'm

not ready to live a life like this in pain.

If anyone has experienced this or has suggestions, I would really

appreciate it. Thanks, Jen.