, Pls. forward to Hobbs, thank you

May 10, 2002

Dear ,

has forwarded your many helpful postings to the group, which I

have found to be very thorough and practical....thank you!

>Her French doctors really screwed up with her two older children. I

hope >the younger one does not face the same problems.

I was really shocked by your latest report of Marie-Pia's children. I

feel so bad that these beautiful children are not receiving the proper

treatment. Would you happen to know where in France that they are being

treated?

I was under the impression that France was progressive as I have a 1997

published article, " Pregnancy in Relapsing Polychondritis. " It was

written by Papo, MD, Internal Medicine Unit, Hospital

Pitie-Salpetriere, 83 Boulevard de l'Hospital, 75651 Paris decex 13,

France.

Dr. Papo and his 5 colleagues did a review of 180 patients with RP (116

female) patients between 1970-1995 seen at their institution. Surely,

there must be some doctors in France familiar with RP.

The names of his colleagues are Bertrand Wechsler,MD,Pierre Godeau, MD,

Jean- Piette, MD: La Pitie-Salpetriere Hospital and

Oliver Bletry, MD, Anne-Marie Piette, MD: Foch Hospital Suresnes,

France....

>I think that one family like Marie-Pia's with three young children who

have

>had RP for several years has got to be a world record. First for

pediatric

>cases and second for three in one family at the same time. M-P said

>>>there is one doctor who may want to test for a gene. I sure hope

that >the docs get their act together and get the children's flares under

control.

I don't want to be presumptuous, but, if the doctors that are currently

treating Coralie and are not effective, would Dr. Papo or his

colleagues mentioned in this article be a possible consult?

If you feel that this information is helpful, please forward it to

Marie-Pia (as I do not have her address).

Thank you and Aloha, from Honolulu

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