Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Go ahead and vent whenever necessary. Many of your frustrations are shared by those of us in this boat. I use the Sandostatin shots. I get 30mg. in the hip every 28 days and have for 14 months. I think it has helped, as I only missed six work days this year - usually I miss 2 - 3 weeks. I only take the Creon 10 for about two weeks in the cycle - a week before the shot and a week after the shot for overlap as the medicine begins to fade and then takes a while to kick in (timed-released). I don't have constant pain - only when I am having an acute attack - 3 or 4 times a year. Remember, everyone has a different experience. That is one reason I like this site as we can share and find common threads, new avenues to try, hope and support! You can e-mail me if you want more information about the sandostatin. Cecilia Mesa, AZ Quote Link to comment Share on other sites More sharing options...
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