Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 I have a grand daughter with CF. She will be two this December. Her name is Abby (Abigail). Abby also has a tongue tie. Abby can not drink liquids. Some of the liquid enters hers lungs. We thicken her liquids so that they have the consistancy of honey. The doctros do not " think " that the tongue tie is the cause of the swallow problem. Does your husband have any trouble swallowing? Abby also has Arnold Chiari malformation. This is when the brain stem extends through the base of the skull to far. Arnold Chiari can also cause swallowing problems. We are just hoping that she outgrows the swallowing problems and doesn't have to have surgey for the Arnold Chiari. Gale Grandma to Abby (almost 2 yrs old with CF) > > > hi im new to this site, my name is sue and i have a 2yr oldwith cf. > >i live > > > in uk and after reading quite a few of ur posts thought id get > >intouch. > > > Ethan has been quite well of late and has only been diagnosed for 6 > >months > > > hope to hear from some of u soon > > > take care > > > love sue > > > > > > _________________________________________________________________ > > > Use MSN Messenger to send music and pics to your friends > > > http://www.msn.co.uk/messenger > > > > _________________________________________________________________ > On the move? Get Hotmail on your mobile phone http://www.msn.co.uk/msnmobile Quote Link to comment Share on other sites More sharing options...
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