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I have a grand daughter with CF. She will be two this December. Her

name is Abby (Abigail). Abby also has a tongue tie. Abby can not

drink liquids. Some of the liquid enters hers lungs. We thicken her

liquids so that they have the consistancy of honey. The doctros do

not " think " that the tongue tie is the cause of the swallow problem.

Does your husband have any trouble swallowing?

Abby also has Arnold Chiari malformation. This is when the brain

stem extends through the base of the skull to far. Arnold Chiari can

also cause swallowing problems. We are just hoping that she outgrows

the swallowing problems and doesn't have to have surgey for the

Arnold Chiari.

Gale

Grandma to Abby (almost 2 yrs old with CF)

> > > hi im new to this site, my name is sue and i have a 2yr oldwith

cf.

> >i live

> > > in uk and after reading quite a few of ur posts thought id get

> >intouch.

> > > Ethan has been quite well of late and has only been diagnosed

for 6

> >months

> > > hope to hear from some of u soon

> > > take care

> > > love sue

> > >

> > >

_________________________________________________________________

> > > Use MSN Messenger to send music and pics to your friends

> > > http://www.msn.co.uk/messenger

> >

>

> _________________________________________________________________

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